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Thank you all for posting. I understand that I alone cannot pass on CF, but since by genetics each of my children are carriers one child has a cf mutation and the other child the 5T variant I believe I could make them each a carrier without my husband contributing genetically. A person with CF...

I am wondering after a child is diagnosed with CF did any of the parents then find out that they too had CF. I think I have read at least one story on the forum like this. I have one child with G542X and one child with a 5T variant. After reading the carriers with symptoms posting recently I...

I am wondering after a child is diagnosed with CF did any of the parents then find out that they too had CF. I think I have read at least one story on the forum like this. I have one child with G542X and one child with a 5T variant. After reading the carriers with symptoms posting recently I...

As for airport security we make sure out daughter does not go through the full body scanners and just say she has has too many CT scans recently. I also suggest asking the security screener to put on new gloves. I also find if I take the compressor out of the bag, then they immediately see...

As for airport security we make sure out daughter does not go through the full body scanners and just say she has has too many CT scans recently. I also suggest asking the security screener to put on new gloves. I also find if I take the compressor out of the bag, then they immediately see...

My daughter isin the intermediate test result group regarding CF, so I see why not getting a diagnosis is so frustrating. It is affecting my daughter's care as far as her lungs. With what I think is CF treatment (Vest, Hypertonic Saline, IV antibiotics as needed) her FEV 1 up from 55% to 100% in...

My daughter isin the intermediate test result group regarding CF, so I see why not getting a diagnosis is so frustrating. It is affecting my daughter's care as far as her lungs. With what I think is CF treatment (Vest, Hypertonic Saline, IV antibiotics as needed) her FEV 1 up from 55% to 100% in...

I may be coming from a very different perspective here. My 12 year old is suspected of having CF and has been hospitalized 3 times this past year. My 9 year old has gone through periods of resentment, compassion, and just plain confusion. The lesson I learned was to have a plan. Offer the...

I may be coming from a very different perspective here. My 12 year old is suspected of having CF and has been hospitalized 3 times this past year. My 9 year old has gone through periods of resentment, compassion, and just plain confusion. The lesson I learned was to have a plan. Offer the...

Heather: My daughter does have a 504 plan and I agree it is meant to keep her on the same level playing field. Elizabeth: My daughter has received homebound instruction this year. She received it for the 2 weeks we knew ahead of time she would be absent for surgery. Then because the two...

Heather: My daughter does have a 504 plan and I agree it is meant to keep her on the same level playing field. Elizabeth: My daughter has received homebound instruction this year. She received it for the 2 weeks we knew ahead of time she would be absent for surgery. Then because the two...

<P>My 7th grader has missed over 4 weeks of school so far. She has a 504 plan and received homebound instruction for each of the 2 2-week absences. How do you handle it when your child misses a day a week? </P> <P>I have been E-mailing her teachers1 week beforea scheduled doctor's appointment...

<P>My 7th grader has missed over 4 weeks of school so far. She has a 504 plan and received homebound instruction for each of the 2 2-week absences. How do you handle it when your child misses a day a week? </P> <P>I have been E-mailing her teachers1 week beforea scheduled doctor's appointment...

We took a cruise with a vest and neb last spring with daughter (in diagnostic limbo). The room was small and bathroom was really small. I do not think you have room in the bathroom to vest. I found the Disney line to be very accommodating (prior to vest use) but Carnival not helpful at all...

We took a cruise with a vest and neb last spring with daughter (in diagnostic limbo). The room was small and bathroom was really small. I do not think you have room in the bathroom to vest. I found the Disney line to be very accommodating (prior to vest use) but Carnival not helpful at all...

My daughter takes Lactobacilis (sp) that is kept in the frig at the pharmacy once a day when not on antibiotics and 2 times a day during and for 2 weeks after antibiotics. Her last antibiotic had a high likelihood of causing C-diff I was told and she made it through fine. Best wishes for a...

My daughter takes Lactobacilis (sp) that is kept in the frig at the pharmacy once a day when not on antibiotics and 2 times a day during and for 2 weeks after antibiotics. Her last antibiotic had a high likelihood of causing C-diff I was told and she made it through fine. Best wishes for a...

You may want to take a picture of the vest machine in the mode where the number of hours is recorded before your X visitation and after. You can use the time and date stamp on the picture and the number of hours used on the machine to prove that he does not do the vest at the X house.

You may want to take a picture of the vest machine in the mode where the number of hours is recorded before your X visitation and after. You can use the time and date stamp on the picture and the number of hours used on the machine to prove that he does not do the vest at the X house.

We have the Hill Rom Vest and I believe all 3 companies work the same way. As the child grows the machine iteself stays the same just the Vest size grows. We were told that new vests as a person grows are free as well as replacement parts such as hoses. We have not needed a new vest size yet...