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  1. M

    What is your FEV1 Score?

    I'm at 23% and have been for about a year, currently listed for transplant
  2. M

    What is your FEV1 Score?

    I'm at 23% and have been for about a year, currently listed for transplant
  3. M

    What is your FEV1 Score?

    I'm at 23% and have been for about a year, currently listed for transplant
  4. M

    Columbus CF Docs

    I myself have never been to columbus (I go to Akron) but I have heard good things from people who do
  5. M

    Columbus CF Docs

    I myself have never been to columbus (I go to Akron) but I have heard good things from people who do
  6. M

    Columbus CF Docs

    I myself have never been to columbus (I go to Akron) but I have heard good things from people who do
  7. M

    Got the boot from BABY CF CLINIC DAY

    In our peds and adult clinics we only wear the masks outside the exam rooms, in our bathrooms they have antibacterial wipes/spray and ask that all cf patients clean any surfaces they touch when they're done. Faucets, handles, toilet seat, etc. For us the docs only gown/mask up if the patient in...
  8. M

    Got the boot from BABY CF CLINIC DAY

    In our peds and adult clinics we only wear the masks outside the exam rooms, in our bathrooms they have antibacterial wipes/spray and ask that all cf patients clean any surfaces they touch when they're done. Faucets, handles, toilet seat, etc. For us the docs only gown/mask up if the patient in...
  9. M

    Got the boot from BABY CF CLINIC DAY

    In our peds and adult clinics we only wear the masks outside the exam rooms, in our bathrooms they have antibacterial wipes/spray and ask that all cf patients clean any surfaces they touch when they're done. Faucets, handles, toilet seat, etc. For us the docs only gown/mask up if the patient in...
  10. M

    Flying after a pneumothorax (collapsed lung)

    I'm not entirely sure but I thought I heard from someone before about some kind of test, like a pressure test for your lungs or something that can help determine what your lungs can handle before flying. Like I said though I'm not really sure. Hopefully someone else here has some experience with...
  11. M

    Flying after a pneumothorax (collapsed lung)

    I'm not entirely sure but I thought I heard from someone before about some kind of test, like a pressure test for your lungs or something that can help determine what your lungs can handle before flying. Like I said though I'm not really sure. Hopefully someone else here has some experience with...
  12. M

    Flying after a pneumothorax (collapsed lung)

    I'm not entirely sure but I thought I heard from someone before about some kind of test, like a pressure test for your lungs or something that can help determine what your lungs can handle before flying. Like I said though I'm not really sure. Hopefully someone else here has some experience with...
  13. M

    Getting it all in a day...

    Have you tried using an Albuterol inhaler instead of neb? It'll cut down on your med time and I know at least for me personally it works better than the neb because that makes me actually more wheezy and shaky
  14. M

    How often do you get lung scans?

    In our center we get a chest x-ray once a year unless they order one when we are sick to check for changes. I am 22 yrs old and I never had a chest CT scan done until I started going throughout the transplant evaluation process. They have me repeat one every 6 months but that is used to...
  15. M

    How often do you get lung scans?

    In our center we get a chest x-ray once a year unless they order one when we are sick to check for changes. I am 22 yrs old and I never had a chest CT scan done until I started going throughout the transplant evaluation process. They have me repeat one every 6 months but that is used to...
  16. M

    How often do you get lung scans?

    In our center we get a chest x-ray once a year unless they order one when we are sick to check for changes. I am 22 yrs old and I never had a chest CT scan done until I started going throughout the transplant evaluation process. They have me repeat one every 6 months but that is used to...
  17. M

    So discouraged- UPDATE

    So discouraged! Does he do aerosol tobi at home? That might be something to ask the docs about if he's not already on it, also is he diabetic? I know if I let my sugars gets real out of control I can get sick real quick because of it. Other than that maybe there is something growing deeper that...
  18. M

    So discouraged- UPDATE

    So discouraged! Does he do aerosol tobi at home? That might be something to ask the docs about if he's not already on it, also is he diabetic? I know if I let my sugars gets real out of control I can get sick real quick because of it. Other than that maybe there is something growing deeper that...
  19. M

    So discouraged- UPDATE

    So discouraged! Does he do aerosol tobi at home? That might be something to ask the docs about if he's not already on it, also is he diabetic? I know if I let my sugars gets real out of control I can get sick real quick because of it. Other than that maybe there is something growing deeper that...
  20. M

    Patiently Waiting for a Call

    That's great to hear she's moving back in the right direction! I may not know her or you but you have both definitely been in my thoughts and sending positive vibes your way. Tell her to keep fighting and hanging in there!
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