Search results

  1. B

    Effectiveness of IVF -- In regards to a Male CFer and female non-CF

    It worked very well for us. We have 3 children all from IVF (13, 8, and 8). We had the same situation. I have CF and my wife does not. For us it was all about how well my wife's eggs progressed. It took us 2 cycles each of the two times she became pregnant.
  2. B

    About to start Vertex trial-quetion for those that have been through Kalydeco trial

    If I am not mistaken, 661 has not made it as far as the 809 trial. I believe it is only in phase 2. Open label or being able to stay on the drug after you finish the study only occurs after phase 3. I do not believe you will be able to stay on the drug after the trial. You should ask the doctor...
  3. B

    Inhaling imipenem

    There is a guy on facebook (memejohn) who has used what you are talking about and has had good results. I believe he is on this board as well. He goes by JohnO I believe here.
  4. B

    Headaches

    I would also say to take her to see an ENT. I have the same problems. My disease is my sinuses. When they are well I stay well. When they are sick, my lungs are sick. I have had to have sinus surgery 8 times. But every time I have it I stay well for a long time (2-3 years) with no IV's. As long...
  5. B

    new mom to CF baby girl with double DeltaF508

    I know how you feel. When I was diagnosed 42 years ago my parents felt the same way. However, you should know that in today's world it is not that way anymore. We are much closer to a cure now than we have ever been before. Hopefully in the near future there will be medicines available for us...
  6. B

    Transplant/cepacia

    Thank you. I will check both of these places out.
  7. B

    Transplant/cepacia

    I was wondering if there were transplant centers out there that are willing to do a transplant with someone who has cepacia? I have had it for 25 years. Doesn't really cause me a lot of trouble but I wanted to know if there are options for me when that time comes.
  8. B

    How much do you weigh, how tall are you, and how old are you?

    male Age: 42 Height: 5' 10" Weight: 165
  9. B

    CF- the Thief.

    I know exactly how you feel. I get so frustrated because we cannot do what we need to with our house cars etc because the disease is so expensive. When I went back to school I had to find scholarships to pay for it. I was always worried that I would have to quit because I would not be able to...
Top