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  1. A

    Bad news from Vertex

    Good thing Vertex and the CF Foundation had a back-up plan. Hail VX 661!
  2. A

    Bad news from Vertex

    Good thing Vertex and the CF Foundation had a back-up plan. Hail VX 661!
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    Feel Like He's Killing Himself- Please Please Help

    Maybe a prescription for anti-depressants would give him the extra boost he needs to stay on top of his care regimen.
  4. A

    Feel Like He's Killing Himself- Please Please Help

    Maybe a prescription for anti-depressants would give him the extra boost he needs to stay on top of his care regimen.
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    Bad news from Vertex

    phase 2a. Due to be approved by the FDA in 2016.
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    Bad news from Vertex

    phase 2a. Due to be approved by the FDA in 2016.
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    Bad news from Vertex

    Actually if you read down on the link I posted you will see that they are testing it both with and without 770 in different arms of the study. Sounds like the drug is doing really well and should have no problem getting to the next stage of trials!
  8. A

    Bad news from Vertex

    Actually if you read down on the link I posted you will see that they are testing it both with and without 770 in different arms of the study. Sounds like the drug is doing really well and should have no problem getting to the next stage of trials!
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    Bad news from Vertex

    What about this federal website that says they're being tested together. Can anyone clarify? http://clinicaltrials.gov/ct2/show/NCT01531673
  10. A

    Bad news from Vertex

    What about this federal website that says they're being tested together. Can anyone clarify? http://clinicaltrials.gov/ct2/show/NCT01531673
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    New to Cayston

    Is Cayston available to new users now? My daughter's supposed to be starting it.
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    New to Cayston

    Is Cayston available to new users now? My daughter's supposed to be starting it.
  13. A

    Bad news from Vertex

    I think the 661 is being tested in conjunction with 770 right now. I always thought that DF508 had trouble forming the sodium ion channel as well. Personally, i think they should modify the 809 trials to include all 3 drugs since I heard that may be the key to correcting DF508.
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    Bad news from Vertex

    I think the 661 is being tested in conjunction with 770 right now. I always thought that DF508 had trouble forming the sodium ion channel as well. Personally, i think they should modify the 809 trials to include all 3 drugs since I heard that may be the key to correcting DF508.
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    Advice about Fast Nebulizers

    What medications can be nebbed with the mobilaire and how do you manage multiple medications with only one nebulizer? More info please?
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    Advice about Fast Nebulizers

    What medications can be nebbed with the mobilaire and how do you manage multiple medications with only one nebulizer? More info please?
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    Advice about Fast Nebulizers

    Nothing more than a single drop when you open the top and dump it out in your hand.
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    Saveferris 2009

    Sorry but that link has since been taken down by the lady who started it so it would not be possible to retrieve. However, she is now posting her updates on her blog site. Refer to the link below. I hope it helps. Good Luck! saltyspark.blogspot.com
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    Saveferris 2009

    Sorry but that link has since been taken down by the lady who started it so it would not be possible to retrieve. However, she is now posting her updates on her blog site. Refer to the link below. I hope it helps. Good Luck! saltyspark.blogspot.com
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    Top 10 great things about having CF!

    LOL...Eating too much junk food is a good thing!
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