Search results

  1. A

    Top 10 great things about having CF!

    LOL...Eating too much junk food is a good thing!
  2. A

    complicated situation..

    Start jogging or get a bike you can ride around campus.
  3. A

    complicated situation..

    Start jogging or get a bike you can ride around campus.
  4. A

    How do you nicely avoid things

    Well in that case I would just keep making up excuses until they finally take the hint. Its always good to avoid confrontation when at all possible and if you try explaing all of that to them they're not going to get it and they'll just end up taking it personally and feeling like they are not...
  5. A

    How do you nicely avoid things

    Well in that case I would just keep making up excuses until they finally take the hint. Its always good to avoid confrontation when at all possible and if you try explaing all of that to them they're not going to get it and they'll just end up taking it personally and feeling like they are not...
  6. A

    Barriers to your care?

    We don't feel like Tobi is doing much for our daughter either, which is why we're considering switching her to Cayston.
  7. A

    Barriers to your care?

    We don't feel like Tobi is doing much for our daughter either, which is why we're considering switching her to Cayston.
  8. A

    How do you nicely avoid things

    I wouldn't worry about it too much since she already cultures mold and pseudomonas and will always have them. I don't see why it matters if a cat comes over there occasionally. Its not bad for CF kids to be around cats unless they're allergic to them. As far as the smoking goes it is fine as...
  9. A

    How do you nicely avoid things

    I wouldn't worry about it too much since she already cultures mold and pseudomonas and will always have them. I don't see why it matters if a cat comes over there occasionally. Its not bad for CF kids to be around cats unless they're allergic to them. As far as the smoking goes it is fine as...
  10. A

    Cayston Finger Slicing Club

    They want to switch my daughter from tobi to cayston since the tobi hasn't been doing much more than keeping the infection at bay. Which one's better in your opinion?
  11. A

    Cayston Finger Slicing Club

    They want to switch my daughter from tobi to cayston since the tobi hasn't been doing much more than keeping the infection at bay. Which one's better in your opinion?
  12. A

    Saveferris 2009

    Refer your physician to the following thread and when you go to get the script filled just hope your insurance agrees to cover it. Good Luck!! http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=616441&enterthread=y
  13. A

    Saveferris 2009

    Refer your physician to the following thread and when you go to get the script filled just hope your insurance agrees to cover it. Good Luck!! http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=616441&enterthread=y
  14. A

    Ironic...

    Hah! That's hilarious. I haven't been able to log on to the site all day. You'd think this place would run a little better if its ad supported but nope!
  15. A

    Ironic...

    Hah! That's hilarious. I haven't been able to log on to the site all day. You'd think this place would run a little better if its ad supported but nope!
  16. A

    Largest gene therapy trial for cystic fibrosis begins

    This could potentially help everyone with CF! I wonder if gene therapy will prove to be more beneficial than correctors since it fixes a more fundamental problem causing the disease. At least we got a back up to the 661 and 809 now.
  17. A

    Largest gene therapy trial for cystic fibrosis begins

    This could potentially help everyone with CF! I wonder if gene therapy will prove to be more beneficial than correctors since it fixes a more fundamental problem causing the disease. At least we got a back up to the 661 and 809 now.
  18. A

    Largest gene therapy trial for cystic fibrosis begins

    Ya I just saw that. Lots of good stuff for CF just around the corner!
  19. A

    Largest gene therapy trial for cystic fibrosis begins

    Ya I just saw that. Lots of good stuff for CF just around the corner!
  20. A

    question

    You can do HTS and tobi out of the pari neb but don't use the same nebulizer for both unless it is boiled in between.
Top