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Not far. 15-20 min. drive into the city. Helpful since we have to pick all of her medications up from there.

This is why our doctor was saying that DF508 and other similar mutations may need all 3 of the vertex drugs. Two to properly fold the protein and one to get it through the gate.

This is why our doctor was saying that DF508 and other similar mutations may need all 3 of the vertex drugs. Two to properly fold the protein and one to get it through the gate.

My daughter passed state screening and was just diagnosed CF in September. All testing is sucseptible to false positives/negatives. The only way to be sure is to get the full genetic screening. If your child has CF then they need to be getting the proper treatments as soon as possible to avoid...

My daughter passed state screening and was just diagnosed CF in September. All testing is sucseptible to false positives/negatives. The only way to be sure is to get the full genetic screening. If your child has CF then they need to be getting the proper treatments as soon as possible to avoid...

Ya and that recurrent pneumonia will quickly turn into bronchiectasis if you don't get him cleared out. Thats permanent hardening of the airways and it can be very painful.

Ya and that recurrent pneumonia will quickly turn into bronchiectasis if you don't get him cleared out. Thats permanent hardening of the airways and it can be very painful.

I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24 Yep just make sure your insurance will cover the prescription before you get it filled or you're gonna have to take out a second mortgage on your house to pay for a one month supply.

I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24 Yep just make sure your insurance will cover the prescription before you get it filled or you're gonna have to take out a second mortgage on your house to pay for a one month supply.

I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24 Ask your doctor to write you a prescription for it and test it out. Your mutation is probably too rare for them to run a clinical trial on and if your doctor writes you a prescription then your...

I am f508 and 3272-26a>g. How do I know if mine is gating and what class I'm in?? Darryl 44 dx 24 Ask your doctor to write you a prescription for it and test it out. Your mutation is probably too rare for them to run a clinical trial on and if your doctor writes you a prescription then your...

Ask your doctor to write you a prescription for it and test it out. Your mutation is probably too rare for them to run a clinical trial on and if your doctor writes you a prescription then your insurance company will probably pay for it. Some other people on this site have been doing that exact...

Ask your doctor to write you a prescription for it and test it out. Your mutation is probably too rare for them to run a clinical trial on and if your doctor writes you a prescription then your insurance company will probably pay for it. Some other people on this site have been doing that exact...

Call an accredited CF center and schedule an appointment for him to be seen there. He really needs to be on pancreatic enzymes if that will help him to thrive. Our daughter was misdiagnosed until the age of 4 until we finally brought her to see a specialist. She passed the initial blood test...

Call an accredited CF center and schedule an appointment for him to be seen there. He really needs to be on pancreatic enzymes if that will help him to thrive. Our daughter was misdiagnosed until the age of 4 until we finally brought her to see a specialist. She passed the initial blood test...

It works slightly with other mutations but its better when taken in conjunction with 661 or 809.

It works slightly with other mutations but its better when taken in conjunction with 661 or 809.

From the way I understand it your baby shouldn't have CF. The first test is prone to false positives and the second test can have false positives and false negatives. Thats what happened with my daughter is that she had a true positive then a false negative. I'm not 100% sure since I've only...

From the way I understand it your baby shouldn't have CF. The first test is prone to false positives and the second test can have false positives and false negatives. Thats what happened with my daughter is that she had a true positive then a false negative. I'm not 100% sure since I've only...

My daughter was the same way. She was fussy as a baby and was in the 90th percentile until it showed up on a check up at the age of 4 that she hadn't gained any weight in a year. We went through all this stuff with food and milk allergies and asthma with the doctors until she was finally...