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  1. R

    Son with Positive Sweat Test What next

    Our son was diagnosed 3 months ago. We ordered and got the vest after his first clinic appointment. He went from being tired a lot to running twice as far as he ever did. We also called him "the little dragon" since he was always breathing so hard while sleeping. Now he's as quiet as his...
  2. R

    Son with Positive Sweat Test What next

    Our son was diagnosed 3 months ago. We ordered and got the vest after his first clinic appointment. He went from being tired a lot to running twice as far as he ever did. We also called him "the little dragon" since he was always breathing so hard while sleeping. Now he's as quiet as his...
  3. R

    Mom's of CF'ers ...come in

    I agree-- our son was not diagnosed until 3 years, and only because his little sister almost died from MI after birth. Where were the doctors? Where was the diagnosis? Every symptom-- breathing problems documented from 2 weeks old! Bowel problems from 1 month old! Why do the doctors say this is...
  4. R

    Mom's of CF'ers ...come in

    I agree-- our son was not diagnosed until 3 years, and only because his little sister almost died from MI after birth. Where were the doctors? Where was the diagnosis? Every symptom-- breathing problems documented from 2 weeks old! Bowel problems from 1 month old! Why do the doctors say this is...
  5. R

    Mom's of CF'ers ...come in

    I agree-- our son was not diagnosed until 3 years, and only because his little sister almost died from MI after birth. Where were the doctors? Where was the diagnosis? Every symptom-- breathing problems documented from 2 weeks old! Bowel problems from 1 month old! Why do the doctors say this is...
  6. R

    Mom's of CF'ers ...come in

    I agree-- our son was not diagnosed until 3 years, and only because his little sister almost died from MI after birth. Where were the doctors? Where was the diagnosis? Every symptom-- breathing problems documented from 2 weeks old! Bowel problems from 1 month old! Why do the doctors say this is...
  7. R

    Mom's of CF'ers ...come in

    I agree-- our son was not diagnosed until 3 years, and only because his little sister almost died from MI after birth. Where were the doctors? Where was the diagnosis? Every symptom-- breathing problems documented from 2 weeks old! Bowel problems from 1 month old! Why do the doctors say this is...
  8. R

    Feeling alone

    We're in the same boat-- diagnosed April 20-- one month before you. Then we found out that our son has it too. Double punch. You may want to look at the responses for the chat "Newly Diagnosed/ Amnio diagnosis....now what happens?" There's some good advice there and may make you feel not so...
  9. R

    Feeling alone

    We're in the same boat-- diagnosed April 20-- one month before you. Then we found out that our son has it too. Double punch. You may want to look at the responses for the chat "Newly Diagnosed/ Amnio diagnosis....now what happens?" There's some good advice there and may make you feel not so...
  10. R

    Feeling alone

    We're in the same boat-- diagnosed April 20-- one month before you. Then we found out that our son has it too. Double punch. You may want to look at the responses for the chat "Newly Diagnosed/ Amnio diagnosis....now what happens?" There's some good advice there and may make you feel not so...
  11. R

    Feeling alone

    We're in the same boat-- diagnosed April 20-- one month before you. Then we found out that our son has it too. Double punch. You may want to look at the responses for the chat "Newly Diagnosed/ Amnio diagnosis....now what happens?" There's some good advice there and may make you feel not so...
  12. R

    Feeling alone

    We're in the same boat-- diagnosed April 20-- one month before you. Then we found out that our son has it too. Double punch. You may want to look at the responses for the chat "Newly Diagnosed/ Amnio diagnosis....now what happens?" There's some good advice there and may make you feel not so...
  13. R

    Help please !!!

    I feel the same way. I think denial is part of the process, like when someone dies. Getting the diagnosis of this disease for multiple children is, in a way, like something dieing-- the normal life you had, the things you expected would happen in your child's future (like marriage, kids, etc.)...
  14. R

    Help please !!!

    I feel the same way. I think denial is part of the process, like when someone dies. Getting the diagnosis of this disease for multiple children is, in a way, like something dieing-- the normal life you had, the things you expected would happen in your child's future (like marriage, kids, etc.)...
  15. R

    Help please !!!

    I feel the same way. I think denial is part of the process, like when someone dies. Getting the diagnosis of this disease for multiple children is, in a way, like something dieing-- the normal life you had, the things you expected would happen in your child's future (like marriage, kids, etc.)...
  16. R

    Help please !!!

    I feel the same way. I think denial is part of the process, like when someone dies. Getting the diagnosis of this disease for multiple children is, in a way, like something dieing-- the normal life you had, the things you expected would happen in your child's future (like marriage, kids, etc.)...
  17. R

    Help please !!!

    I feel the same way. I think denial is part of the process, like when someone dies. Getting the diagnosis of this disease for multiple children is, in a way, like something dieing-- the normal life you had, the things you expected would happen in your child's future (like marriage, kids, etc.)...
  18. R

    Professions for people with CF

    Is it possible to become a pilot if you have cf?
  19. R

    Professions for people with CF

    Is it possible to become a pilot if you have cf?
  20. R

    Professions for people with CF

    Is it possible to become a pilot if you have cf?
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