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Whated to know if I have anything to look forward to in my lifetime as far as a total cure or something that stops progression or loss of lung fuction or give us a noramal life im getting older im 34 and im getting to point were I think they will never find anything and its crazt to think that...

Ok I can only tell u how it is for me I have cy and im a 34yrd male and had cf since born I also have very little ejaculate and also almost clear milky color takes days to get back to any amonunt just like u said and testigals r small but both same size doctor told me its because of scaring or...

I know how frustrating it can b i went in hospital for coughing blood got blood to stop but function didn't get better i was like wth and all doctors say well it may not get better it maybe new baseline with just made me more sad. Cause mine keeps goin down so went to another doctor got but on...

First off I'm so sorry that this is goin on i know how bad it can get but not to ur extint but anyway if i was u i would b all over them doctors to c what the heck is goin on caise obviously things that they doin isn't helpin or go to another hospital or doctor don't stop fighting or askin...

If anyone like to talk anytime I'm here too I'm 34yr male dx at birth i like to talk and ill try to help if i can i always like someone to talk with pm me and ill give u my info hope everyone gets better and stays better

I would have been so mad them sayin that bout pain meds people who really need them can't get help or its like pulling teeth for them to give anything that will help makes it so hard to get relieve. just like Getting cold medicine from behind the counter now people take it to far and doctors...

psychotherapy. questions I have been thinking about seeing a therapist cause i been having alot of fear bout getting worse and the end of life things i always was secptical cause what could they say or do that will help with the inevitable i always thought they could help with things that could...

thank u Thanks for help the soul mate knows my cf and everything but im scared that it will b too much for her and i just want her happy she is great i wish and i bet a lot of other people want just to b healthy would make it a lot easier thanks everyone for kind words and help

My thoughts too man i would have been mad they wouldn't fot my blood til they fixed it all that trouble to get it then they won't bother with it crazy I'm thimking of getting one a port no viens hardly no one can stick me and have to wait days on picc getting old but i did hear that fast...

Also i have had a bad weez almost gurgeling sound in middle of chest when i blow out all of my air i can really feel it gutgeling in there sorry thought to add that with all my coughing up blood and cheat pain thanks

thank you thank u much for the help andi was wondering if u guys think it might b a pulmonary embolism i had one befor kind feels like this but last one put me in icu i passed out and woke up there i been coughing up blood and front chest pains on both sides of very top of chest. i really hope...

thank you everyone Thanks everyone for advice and wishes i guess goin in really don't want to but not getting better i hope it goes smooth and nothing else is wrong or goes wrong i had a pulmonary embolisim a few yrs ago hope that's not it i hope hospital goes smooth and i don't pick up anymore...

thank you Thank you so much makes me feel little better now not all blood but mostly blood in sputum and a lot of grumbling and weez at end of breath and at beginning and some pain it front of chest and they want me to go in hospital what would u do i don't feel ruun down just scared of my...

I'm really scared that I'm on the decline i wanted more time I'm sure they r a lot worse people and i want everyone to get better sorry I'm rambling I'm just afriad of death

I coughed up blood last night not to much but enough and front of chest is hurting blood now comes and goes today i just got out of hospital from clean out bout a month ago should i go back or try to do oral stuff I'm pretty scared all veins r gone and it kills me when they try a millon tis and...

Yes i have been told i have long lungs but had no problems with that issue sorry to hear that let me know how it goes i might have to get port soon really nervous bout it all my veins r gone