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I so wish my son had been diagnosed at birth. Mostly because he would have been getting the proper care all this time, and because all of this would have been normal for him if he had done it all his life. That's crazy that they didn't tell you what normal poop would look like. I breast fed all...

I looked it up as soon as he started coughing blood and saw that it usually means a person with cf is getting an infection. There wasn't any clots just bright red blood with a little mucus. My Mom said that's it's crazy for this to happen for the first time right after he is diagnosed, but I...

I know he needs the treatments and the pills. I'm not being pill paranoid. I'm a nurse though, and I know that it's better to take the lowest dose of a medication that is effective. All medications come with some cost. It's all about weighing benefit vs risk. Even the pamphlets for the enzymes...

My son started coughing up blood today. He's done a good bit of coughing in his life, and he's never coughed up blood before today. It about gave me a heart attack. It wasn't just pink mucus either. It was almost completely bright red blood. I took him to the ER and they all seemed surprised...

Thank you all for your encouragement! I know I shouldn't beat myself up, but guilt and worry seem to come with parenthood for me at least even without throwing in a chronic genetic disease. We had our first appointment at the CF clinic on Wednesday. I had already looked up accredited clinics on...

I don't know if this is unusual or not, but as an infant and a toddler he was always in the 90 some percentile for height and weight. It wasn't until the last few years that he seems to eat like a horse, but stay very thin. I kept thinking maybe it's because I have always been pretty thin, and...

My 12 year old son had a sweat test, and last Monday I received his result and it was 102. He has always had some respiratory issues. Before he was 3 he had pneumonia twice. He has never been hospitalized. The Dr just gave us antibiotics to give him at home and he recovered. He had colds more...