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You're welcome Believing!

My understanding is they use transgenic mice. See http://www.ncbi.nlm.nih.gov/pubmed/21658634 Also, in Van Goor's research in vitro he used bronchial cells from donated CF lungs. If anyone has cured their CF by taking selenium I'm sure we would know about it by now. So far we are still waiting.

Hi all Just spoke to my nurse practitioner who informed me that this season's flu vaccine did not work out too good. I checked the CDC website and it apparently only protects against 23% of the viruses out there. I am avoiding public places and shopping online to avoid getting infected at the...

Here is an online petition against cutting SS benefits Republicans have made dismantling our Social Security system their top priority now that they have control of Congress. Their first act was to change the rules of the House of Representatives to create a phony crisis in the next few years...

Very interesting... and goes to show why so frequently a diet or lifestyle that works great for one person is often toxic for another... same as how kalydeco works on gating and some other mutations but hurts DeltaF508. There is huge genetic diversity in the human population, therefore it is...

Cinnamon oil and oregano oil are also both effective against MAC according to http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2565950/

Orange oil is highly effective against M. Avium Complex. http://www.ncbi.nlm.nih.gov/pubmed/22560037. I put a drop in my hypertonic saline every day, and have been doing so since December 8. Will post the results of my next culture. I am sure there may be other essential oils that may work...

Hi believingjesus As you may know, Republicans are trying to gut disability payments through a sneaky move - refusing to allocate funds to the disability account. I just did a post on this. I will soon be starting a petition on moveon.org or a similar website, if one does not already exist...

This is an excerpt from dailykos.com. I am going to try and get a petition started on move on.org to stop this. This attempted cut on already low benefits shows how important it is to vote democratic or green party and to stay informed. Let's mobilize the CF community against this...

Just wanted to thank Autumn aka triple15 for the amazing support that she offers to all in despair. I am always amazed to see her compassion - Autumn is usually the first to respond to those seeking upliftment. Let's all try to be more like Autumn. And thanks believingjesus. Compassion is...

CF Adults face many issues and I am thankful to you for addressing the financial and employment side. Many people are not aware of the differences between states in terms of treatment of the disabled. For example, California has short term disability insurance that will pay you 50% of your...

Thank you for your support of this young man. He really needs an advocate and I agree with the other posters that what presents as lack of drive is probably exhaustion. He is so young and deserves every chance at life and a transplant. I would also encourage you to contact Beth Sufian at the...

http://www.medicalnewstoday.com/releases/285437.php Canadians with cystic fibrosis are living almost 20 years longer than they did two decades ago. The median survival age was 49.7 years in 2012, up from 31.9 years in 1990, Dr. Anne Stephenson, a respirologist and research at St. Michael's...

Love is its own reward. If you feel guilty about dragging someone else through the CF experience with you, you should read My Foreign Cities, a love story written by a woman who married a CF man early in life and who stuck with him and loved him and even had fun while going through many...

You should definitely consider filing for disability. First, you are now unable to work. Second, there is a cut-off time after your date last worked, after which you will no longer qualify for SS disability. Third, disability is not final. If you get better, you can return to work. Fourth...

Hi Autumn I would be happy to email you the attachments. Just send me your email in a PM. Also, if your doctor is not willing to prescribe it, I strongly recommend finding one who will. It's your health! I'm still waiting on a decision from insurance but I am confident of getting it...

Cassia (cinnamon), Red Thyme and Peru Balsam essential oils are the most effective at killing P. Aeruginosa biofilms, in that order, with Cassia being about 5 times more effective than the next most effective, Red Thyme. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3346404/ Selected...

Hi Mom I know it's tough to slow down but Autumn is right. Your daughter must priortize rest and treatments. Also - know it is possible to regain lung function and there is hope. I am 38 and in January had a lung function of 31. I went into the hospital, focused on doing sit-ups and yoga...

Just wanted to share the highlights of this article for everyone like myself who has severe lung disease. It can be really hard to get off your butt and try to jog when your lungs are wheezing and you are coughing every 5 seconds, but a scientific study has been done which shows it is safe and...

Hi Malika CF Roundtable just published a blog on this at http://www.cfroundtable.com/2014/11/22/new-cystic-fibrosis-drug-treatment-may-be-potential-game-changer/ Posted on November 22, 2014 by Andrea Scientists from the University of Dundee have, as part of an international collaboration...