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Bill, Question? Does your gut tell you Hunter has CF?? I value your honesty thanks

Bill, I believe you. We have almost lost Hunter 4 times. I feel like I am yelling at the top of my lungs something is wrong and no one is listening. Hunter did get the genetic CF test done, we are on week 5 of waiting for results. When you say Approved CF Center -how do you find out which...

Bill, I believe you. We have almost lost Hunter 4 times. I feel like I am yelling at the top of my lungs something is wrong and no one is listening. Hunter did get the genetic CF test done, we are on week 5 of waiting for results. When you say Approved CF Center -how do you find out which...

Julie7, Thank you for your response. Hunter is not growing normally. He is small for age. He has a brother that is 22months older, D is 5'11" 180lbs Hunter is 5' and just hit 110lbs. He is about to be 14. We have never seen the big growth spurts like we do with other boys his age. He does grow...

Julie7, Thank you for your response. Hunter is not growing normally. He is small for age. He has a brother that is 22months older, D is 5'11" 180lbs Hunter is 5' and just hit 110lbs. He is about to be 14. We have never seen the big growth spurts like we do with other boys his age. He does grow...

Hunter has also been to the ER twice for constipation. He was dx with Failure to Thrive as a baby. He's been hospitalized 4 -times for a week each time. To the ER at least 35 times. His PFT posted above are when he was well.

Hunter has also been to the ER twice for constipation. He was dx with Failure to Thrive as a baby. He's been hospitalized 4 -times for a week each time. To the ER at least 35 times. His PFT posted above are when he was well.

Hello All, I am in need of advise. My son, Hunter is 13 his current full diagnosed is Tracheobronchomalacia (TBM) and Innominate Artery Compression (IAC), Reflux and Reactive Airway Disease. TBM=softened and misshaped airway causing collasaping. IAC=an artery from his heart compresses his...

Hello All, I am in need of advise. My son, Hunter is 13 his current full diagnosed is Tracheobronchomalacia (TBM) and Innominate Artery Compression (IAC), Reflux and Reactive Airway Disease. TBM=softened and misshaped airway causing collasaping. IAC=an artery from his heart compresses his...

Still looking for some advise ---anyone ??

Still looking for some advise ---anyone ??

If a dr tells you you have Tracheomalacia you need to be sure to rule out Bronchomalacia. My son was originally clinically dx with Tracheomalacia. It wasn't until he was 10, after he continued to get very sick that they did a sedated rigid AND flexible bronchoscope. His dx changed to...

If a dr tells you you have Tracheomalacia you need to be sure to rule out Bronchomalacia. My son was originally clinically dx with Tracheomalacia. It wasn't until he was 10, after he continued to get very sick that they did a sedated rigid AND flexible bronchoscope. His dx changed to...

Yes I have heard of Tracheomalacia. My son, Hunter 13 has Tracheobronchomalacia with Innominate Artery Compression. We find that nebulizer treatments of Atrovent help alot. His pulmonary specialist recently changed his meds when he is sick to first Atrovent then follow with Xopenex. The...

Yes I have heard of Tracheomalacia. My son, Hunter 13 has Tracheobronchomalacia with Innominate Artery Compression. We find that nebulizer treatments of Atrovent help alot. His pulmonary specialist recently changed his meds when he is sick to first Atrovent then follow with Xopenex. The...

Hello All, I am in need of advise. My son, Hunter is 13 his full diagnosed is Tracheobronchomalacia (TBM) and Innominate Artery Compression (IAC), Reflux and Reactive Airway Disease. TBM=softened and misshaped airway. IAC=an artery from his heart compresses his trachea. He has had 1RSV...

Hello All, I am in need of advise. My son, Hunter is 13 his full diagnosed is Tracheobronchomalacia (TBM) and Innominate Artery Compression (IAC), Reflux and Reactive Airway Disease. TBM=softened and misshaped airway. IAC=an artery from his heart compresses his trachea. He has had 1RSV...