Search results

Hi Imogene and thank´s for your answer. I haven´t got this cf-girl as a sponsorchild yet. It´s going to be so, but all information isn´t ready and finished yet. I just asking during the wait until all is finished :)

Hi ! I didn´t know where to put my question, but finally i put it here. Im going to be a sponsor through an organisation who normally take care of russian kids during summer, here in Sweden. Some kids can´t travel and one of these is a CF girl who im going to be a sponsor to. I know people in...

Hi everyone ! You can write the first letter if you want to. Please mail me at cf72@spray.se for my homeaddress. /Carola

Lilwebert25...how is your symptoms ?

Dont be left in your "old" cf-Life, welcome the new instead, either it is for a year or 20 years :)

The 29th on november I celebrate 18 years with my lungs. I know a woman who had heir for almost 30 yeras soon. We both live in Sweden.

Anyone who knows ?

AllthebestforLiam...thank you so much, it sounds that you solve my problems :)

Gorf...thank´s for your answer. I will call directly to a cf-nurse and tell them. I finished my antibiotics for this time, yesterday. But it will be used soon again.

Hi ! The last Iv-cures I have been taken, I have been feeling a strange feeling when I flush with Heparin. I wonder if someone more feel like me when they flush their port-a-cath ? And if you Think it´s serious to talk about my doctor about ? 10 seconds after I flushed the heparin, my hearing...

Hi ! Is endometriosis usual among cf-ladies ? I just got the diagnose and whonder how usual it is ? Any one who want to tell about it ?

You are most welcome and write to me if you want to

I tried Tobi Podhaler and was looking forward to use that instead of IV, but I cough so much that I culdn´t continue with it. It´s very different between cf-users. My sister can take it and she has Booth cf and asthma

Do you know if it´s common among us cf-woman to get in menopause earlier than healthy woman ?

Hi ! I started to sweat at nights for almost a year ago, but in my case the doctor Thinks it´s an early stage of menopause, but im only 41.

Wow...I got my first cf-penpal now :) Anyone else who want to write in the old fashion way ??

Hi ! I like to write letters to fill my spare time with. I would like to have someone with cf to write to, and offcourse we will write about other things than cf too. I hope you will enjoy a penpal and write me. No matter where in the World you come from, but we write in English though :). I...

Hi ! After 15 years with my donors lung I started to feel worse in my lungs, and last year I got the diagnose, that I already had manage to find out myself, chronical rejection. I got short breath as fast as I do something, my blowresaults are worse, I got back a port-a-cath, because the old...

Hi !I have some questions about a cronical rejection. How does it feel in the beginning when you start to get a cronical rejection ? Is it anybode here who can tell me who has cronical rejection ? What can you do about it, more then get a new pair of lungs ? Please let me know.<br>

Hi !I have some questions about a cronical rejection. How does it feel in the beginning when you start to get a cronical rejection ? Is it anybode here who can tell me who has cronical rejection ? What can you do about it, more then get a new pair of lungs ? Please let me know.<br>