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  1. Simba15

    Beth Sufian's guide to insurance

    Yes because I am in that situation. I pay $1000/month for my own healthcare. in 2014 obama care kicks in. it see signsof fit already. let's hope is covers cfers
  2. Simba15

    Bloating

    sounds like me! I also just learned about Cystic Fibrosis Related Metabolic Disorder. I know nothing about it except that it exsists. anyone know anything about it?
  3. Simba15

    New website on CF nutrition and natural health care

    Wow this is awesome. question: was this written for cfer's who need to gain weight or cf'ers in general? I am one of the few that needs to lose weight. most of us diagnosed later in life have this problem. will read it all soon. thanks for sharing.
  4. Simba15

    Bloating

    Me too I am like this daily and have been for years. I can't eat any carbs. My stomach blows up
  5. Simba15

    remembering my son . . .nathan daniel

    I am very sorry for your loss. May memories of him warm your heart and may God hold him in his arms. God has bigger plans for him. <3
  6. Simba15

    Anyone diagnosed after 30

    I was sick as a child: constant strep throat, ear infections, sinaus infections, tonsilities, edanoids were HUGE, bronchitis 2 x a year like clock work. Appendectomy at age 18. Tonsilectomy and adendoidectomy at age 17. As I got older my bronchitis got worse and worse until I was having 2 sinus...
  7. Simba15

    Relationships

    wish i could help Hi I wish I could help you. I can't even meet anyone and havent been in a relationship in a long time. So, I'm battling why that even is.
  8. Simba15

    Announcing CF to the world

    wow that was inappropriate of her! When I told my sister she jumped on the phone and called all her kids and told them. I felt that was my place to do that. FB is worse though. You are a right. It is your son't choice - not other peoples.
  9. Simba15

    swimming or cardio/fitness?

    swimming IS cardio
  10. Simba15

    fired for work restrictions

    Something similar happened to me Hi sorry to hear about this. I had a very similar situation. I would advise the following: 1. apply for unemployment - now! Don't assume they will turn you down. Apply and get an answer. 2. Apply for disability. 3. File with the EEOC but be aware that takes...
  11. Simba15

    Exercising???

    exercising I have very good lung function and I walk 90 min a day and swim 2x a week. If I had poor lung function, it isn't just depression making you tired. It's lack of oxygen. Can you get an oxygen pack you wear so you can go out and walk? I'd try that and walk in increments. 5 min for the...
  12. Simba15

    Dog - Yes or No? Please advise

    p.s. the pros of having a dog is more walking for you which is good for your lungs. the con is the care needed if you get sick.
  13. Simba15

    Dog - Yes or No? Please advise

    animal lover Hi, I had a cat for 17 years. Now that she is gone, I do notice that there isn't as much fur and the air feels cleaner. However, having her did not make me sick and I loved her like she was my baby. I now have a short haired dog. The benefit with a dog is they can go places with...
  14. Simba15

    Woman specific issue

    I have had it but not monthly. I have had dime size and nickle size. I has horrible vaginal/cervical mucus as a teenager and lots of yeast infections. As I got older it improved. I once heard and saw a chunk of it in the toilet
  15. Simba15

    hi everyone i have had a new cf diagnosis which was not expected

    I was diagnosed at age 50 and broke down sobbing in the doctors office. I know how you feel. It depends what your gene mutation is. If you have two delta f508 s you'll be sick. Sounds to me like you have a milder gene. That's what I have. I believe I will live to be very old.
  16. Simba15

    CF and salt

    I have to agree with LL. I never put salt on my food - even as a kid. Now that I'm perimenopausal I do sometimescrave chips (for the salt) for french fries but I have never added salt to my food. I jst asked at the CF clinic if CFers require more salt and they told me no. They also said, "The...
  17. Simba15

    Sinus surgery aftercare?

    It depends on what you are having done. I had extensive 3.5 hour surgery. EXCELLENT surgeon! Worst part was post nasal drip that made me cough after surgery. You aren't allowed to cough so I was taken to the drug store for cough meds. I had NO problems. I was home alone and was fine.The worst...
  18. Simba15

    CJs Reflections - Helping to Raise Money - New On-Line Store!

    Love it!! But link doesn't work
  19. Simba15

    Possibly CF?

    Yes I have experienced some of those and you should get a blood and sweat test. Surprised no one tested you yet!
  20. Simba15

    first symptoms and diagnosis of CF at age 73

    I was dx at age fifty. My mutation is rare and ppl usually live longer. If I didn't push the issue insisting something was wrong with me I never would have been dx. It doesn't surprise me you were dx at 73
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