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What state do you live in? There is someone your age here in CT with CF. he has my mutation

My cf doc says it doesn't work but it does work for me a little

Yes! I have a dog. They can be true lifesavers. Get one that is low allergen, intellident, and likes to cuddle. They are awesome friends but can also alert you to your sickness before you know about it. You might qualify for a service dog.

Hang in there Sorry to hear you are having a tough time. This is very common for people who experience any type of trauma and almost dying IS trauma. Keep attending the group adnd ask for individual therapy from a clinican who is experienced with PTSD. EMDR has helped many people with PTSD...

I lost my job as retaliation for having cf. you do nit gave to tell them now or ever. My advise - don't do it!!! When you go in the hospital you may have to apply for FMLA. On the form it asks for a diagnosis. I found out too late you don't gave to put a diagnosis. You can put symptoms such as...

I went to the clinic for the first time. I was there for 4 hours. No idea if it is always like that, how often i am supposed to go or if I make an appt or just walk in. Have to check.

Great. would like to talk to them and compare symptoms and stories.

I don't understand this. Can you explain in baby talk?

Ok what are r334W people's level of functioning and symptoms? I started taking biaxin one year ago. I take it daily. it helped with my sinus infections, bronchitis. in the last year my GI symptoms are worse. getting that checked on monday. I work, take long walks daily (about 3 miles a day). I...

I am wondering if CF causes the hearing loss, itself. my hear loss is "advance for someone of my age" per the audiologist. I have never takentobi or the otherthings most CFers have taken b/c my form of CF is "mild." I was recently thinking maybe the CF itself causes the hearing loss.

I have read there are about 114 of "me" in the world - R334W. Anyone here with that?

you forgot my R334W

the only thing that has worked for me is taking one 500 mg biaxin in a day. It has an anti inflammatory property and helps my sinuses not have so much white frothy stuff coming out. I also has sinus surgery which helps things drain

I have an air purifier in every room of the house and the basement. I use healthmate

I noticed the ppl on the video all have moon faces and so do I. Is this a cf trait?

i lost my job in retaliation for having CF. being sick for a week and probably having health insurance sounds good about now:( many people ate self absorbed and selfish beyond belief. Until they personally have faced adversity they have no idea. I stay away from them

Hi All, I have a rare mutation combo which is quite "mild" compared to others. However, I am very tired. I used to be able to work 14 hour days and am finding I can't do it anymore. When I have to do it for financial reasons, I then crash and sleep an extra 6 hours or so on my day off. Even on...

I think DF508 is the most common mutation.

Watched it. I think thy brought attention to cf

I watched it. How did she do afterward. I don't remember them saying. I liked seeing the "old" lung when they took it out. You could see how bad it was