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Hi, I am having some of the same issues. I feel like people don't know what cystic fibrosis is, it's just this big word to people, and they don't know that germs can be very bad for our children. I don't worry about people bringing sick kids to my church because our church is so small, most...

Hi, I am having some of the same issues. I feel like people don't know what cystic fibrosis is, it's just this big word to people, and they don't know that germs can be very bad for our children. I don't worry about people bringing sick kids to my church because our church is so small, most...

Hi, I am having some of the same issues. I feel like people don't know what cystic fibrosis is, it's just this big word to people, and they don't know that germs can be very bad for our children. I don't worry about people bringing sick kids to my church because our church is so small, most...

Hi, I am having some of the same issues. I feel like people don't know what cystic fibrosis is, it's just this big word to people, and they don't know that germs can be very bad for our children. I don't worry about people bringing sick kids to my church because our church is so small, most...

Hi, <br />I am having some of the same issues. I feel like people don't know what cystic fibrosis is, it's just this big word to people, and they don't know that germs can be very bad for our children. I don't worry about people bringing sick kids to my church because our church is so small...

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Okay, I wondered about Miglustat. No one could answer the question for me - why did it have good results, but no one was buzzing about it. Thanks for clearing things up for me. Who do you right letters to to advocate to get these drugs out? rosesixtyfive, mother of Sam, (dx at birth)...

Okay, I wondered about Miglustat. No one could answer the question for me - why did it have good results, but no one was buzzing about it. Thanks for clearing things up for me. Who do you right letters to to advocate to get these drugs out? rosesixtyfive, mother of Sam, (dx at birth)...

Okay, I wondered about Miglustat. No one could answer the question for me - why did it have good results, but no one was buzzing about it. Thanks for clearing things up for me. Who do you right letters to to advocate to get these drugs out? rosesixtyfive, mother of Sam, (dx at birth)...

Okay, I wondered about Miglustat. No one could answer the question for me - why did it have good results, but no one was buzzing about it. Thanks for clearing things up for me. Who do you right letters to to advocate to get these drugs out? rosesixtyfive, mother of Sam, (dx at birth)...

Okay, I wondered about Miglustat. No one could answer the question for me - why did it have good results, but no one was buzzing about it. Thanks for clearing things up for me. Who do you right letters to to advocate to get these drugs out? <br />rosesixtyfive, mother of Sam, (dx at birth)...