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  1. J

    Working with Cystic Fibrosis

    Two things-- <br /> <br />One, are the antibiotics still working? I have had an increase and then drop and found that I became resistant to a drug. <br /> <br />Two, when you leave the hospital, are you still maintaining all of your treatments, or letting some of it (PT, for example) slide. I...
  2. J

    Culture never growing out enough for susceptibilities??

    Okay, I was just doing some research and found this article extremely interesting. <a target=_blank class=ftalternatingbarlinklarge href="http://path.upmc.edu/cases/case506/dx.html ">http://path.upmc.edu/cases/case506/dx.html </a> "The treatment of SCV S. aureus infection has not being defined...
  3. J

    Culture never growing out enough for susceptibilities??

    Okay, I was just doing some research and found this article extremely interesting. <a target=_blank class=ftalternatingbarlinklarge href="http://path.upmc.edu/cases/case506/dx.html ">http://path.upmc.edu/cases/case506/dx.html </a> "The treatment of SCV S. aureus infection has not being defined...
  4. J

    Culture never growing out enough for susceptibilities??

    Okay, I was just doing some research and found this article extremely interesting. <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://path.upmc.edu/cases/case506/dx.html ">http://path.upmc.edu/cases/case506/dx.html </a><br /> <br />"The treatment of SCV S. aureus...
  5. J

    Culture never growing out enough for susceptibilities??

    I was going to write more, but I had to leave suddenly. My doctor says mine are small colony variants. Here is a definition: "The term "small colony variant" (SCV) refers to the phenomenon where certain variants of bacteria grow slowly on routine media and yield unexpectedly small colonies in...
  6. J

    Culture never growing out enough for susceptibilities??

    I was going to write more, but I had to leave suddenly. My doctor says mine are small colony variants. Here is a definition: "The term "small colony variant" (SCV) refers to the phenomenon where certain variants of bacteria grow slowly on routine media and yield unexpectedly small colonies in...
  7. J

    Culture never growing out enough for susceptibilities??

    I was going to write more, but I had to leave suddenly. My doctor says mine are small colony variants. Here is a definition: <br /> <br />"The term "small colony variant" (SCV) refers to the phenomenon where certain variants of bacteria grow slowly on routine media and yield unexpectedly small...
  8. J

    Culture never growing out enough for susceptibilities??

    Try Septra DS. I often have cultures that they know are staph but don't grow out enough to see what it is.
  9. J

    Culture never growing out enough for susceptibilities??

    Try Septra DS. I often have cultures that they know are staph but don't grow out enough to see what it is.
  10. J

    Culture never growing out enough for susceptibilities??

    Try Septra DS. I often have cultures that they know are staph but don't grow out enough to see what it is.
  11. J

    frustrating clinic appointment

    I am sorry your appointment went badly, especially in light of the fact that your PFTs have stayed the same. CFers usually lose 1-2% per year (although I am sure where I found that fact, I will have to look). Anyway, what I wanted to talk with you about is whether you are using a pump with a...
  12. J

    frustrating clinic appointment

    I am sorry your appointment went badly, especially in light of the fact that your PFTs have stayed the same. CFers usually lose 1-2% per year (although I am sure where I found that fact, I will have to look). Anyway, what I wanted to talk with you about is whether you are using a pump with a...
  13. J

    frustrating clinic appointment

    I am sorry your appointment went badly, especially in light of the fact that your PFTs have stayed the same. CFers usually lose 1-2% per year (although I am sure where I found that fact, I will have to look). Anyway, what I wanted to talk with you about is whether you are using a pump with a...
  14. J

    Recruitment for VX combined

    I am so anxious to see what happens with the combined VX770 and VX809 drug study. To that end, I was trying to find out how far along the study is and when the results would be available. To my surprise, they are still recruiting for the 21-day phase 2 combined study. Apparently, they need a...
  15. J

    Recruitment for VX combined

    I am so anxious to see what happens with the combined VX770 and VX809 drug study. To that end, I was trying to find out how far along the study is and when the results would be available. To my surprise, they are still recruiting for the 21-day phase 2 combined study. Apparently, they need a...
  16. J

    Recruitment for VX combined

    I am so anxious to see what happens with the combined VX770 and VX809 drug study. To that end, I was trying to find out how far along the study is and when the results would be available. To my surprise, they are still recruiting for the 21-day phase 2 combined study. Apparently, they need a...
  17. J

    vx770 and vx809

    After a certain amount of time, you can resume HTS. I haven't yet, so I can't recall the when. At least this is the case for VX 770.
  18. J

    vx770 and vx809

    After a certain amount of time, you can resume HTS. I haven't yet, so I can't recall the when. At least this is the case for VX 770.
  19. J

    vx770 and vx809

    After a certain amount of time, you can resume HTS. I haven't yet, so I can't recall the when. At least this is the case for VX 770.
  20. J

    My gf has 2 daughters with cf

    I know what you are asking, Nick. What you want to hear is that you can make your relationship work even though her daughters have CF. Even when we talk about coming into close contact with others with CF for short periods, we worry about what bacteria we can transmit to each other...
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