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we did fecal elastase test as well, it was conclusive in our case as well (above 400) <br />

i don't let my dd swim in either lakes, rivers or swimming pools, and our doctor also advised against it. the pb with swimming pools is the still water around the edges. In our particular case i consider that it is not worth the risk since my child is not yet colonized with PA (she did culture...

i don't let my dd swim in either lakes, rivers or swimming pools, and our doctor also advised against it. the pb with swimming pools is the still water around the edges. In our particular case i consider that it is not worth the risk since my child is not yet colonized with PA (she did culture...

i don't let my dd swim in either lakes, rivers or swimming pools, and our doctor also advised against it. the pb with swimming pools is the still water around the edges. In our particular case i consider that it is not worth the risk since my child is not yet colonized with PA (she did culture...

I keep bringning up things i learned on this forum almost every visit. My doctor is not really used to this kind of thing, b/c here in France people look up to their doctors and never question anything (which is far from being my case). In spite of that, I don't think she was offended, I take...

I keep bringning up things i learned on this forum almost every visit. My doctor is not really used to this kind of thing, b/c here in France people look up to their doctors and never question anything (which is far from being my case). In spite of that, I don't think she was offended, I take...

I keep bringning up things i learned on this forum almost every visit. My doctor is not really used to this kind of thing, b/c here in France people look up to their doctors and never question anything (which is far from being my case). In spite of that, I don't think she was offended, I take...

thank you so much for posting this! my dd has the same mutation so it surely gives me hope! and happy birthday of course!

thank you so much for posting this! my dd has the same mutation so it surely gives me hope! and happy birthday of course!

thank you so much for posting this! my dd has the same mutation so it surely gives me hope! and happy birthday of course!

i also sterilise every time. our hospital suggested we use disposable kits but they supplied only 1 kit a day while we needed 2 for tobi. they said that the chance of contamination when using the same kit twice during the same day is very small, but i refused and preferred to use the one that...

i also sterilise every time. our hospital suggested we use disposable kits but they supplied only 1 kit a day while we needed 2 for tobi. they said that the chance of contamination when using the same kit twice during the same day is very small, but i refused and preferred to use the one that...

i also sterilise every time. our hospital suggested we use disposable kits but they supplied only 1 kit a day while we needed 2 for tobi. they said that the chance of contamination when using the same kit twice during the same day is very small, but i refused and preferred to use the one that...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>xin</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>just1more</b></i> What is left is very low level of bacteria, which is almost assured to be best equipped to live in warm/moist lungs not dry plastic. In...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>xin</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>just1more</b></i> What is left is very low level of bacteria, which is almost assured to be best equipped to live in warm/moist lungs not dry plastic. In...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>xin</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>just1more</b></i> What is left is very low level of bacteria, which is almost assured to be best equipped to live in warm/moist lungs not dry plastic. In...

my dd (3.5 y/o) cultured if twice. It was like what you described: low count and sensitive to everything. We eeradicated it w/TOBI and Cipro. It was gone after the first round of TOBI each time. The important thing is to have CIPRO and TOBI at the same time, not one after the other (at least...

my dd (3.5 y/o) cultured if twice. It was like what you described: low count and sensitive to everything. We eeradicated it w/TOBI and Cipro. It was gone after the first round of TOBI each time. The important thing is to have CIPRO and TOBI at the same time, not one after the other (at least...

my dd (3.5 y/o) cultured if twice. It was like what you described: low count and sensitive to everything. We eeradicated it w/TOBI and Cipro. It was gone after the first round of TOBI each time. The important thing is to have CIPRO and TOBI at the same time, not one after the other (at least...

does she have any respiratory symptoms? people w/cf have trouble keeping on weight during exacerbations (respiratory infections)