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  1. K

    We're back from evaluation

    hi madisons mom i was wondering what your doctor meant by saying that your daughter has a very complicated case of cf? oh i just feel for you ALL so very much. it is so very scary and when the tx happens it is so surreal just so..............WOW. i am saying prayers every day for your...
  2. K

    We're back from evaluation

    hi madisons mom i was wondering what your doctor meant by saying that your daughter has a very complicated case of cf? oh i just feel for you ALL so very much. it is so very scary and when the tx happens it is so surreal just so..............WOW. i am saying prayers every day for your...
  3. K

    We're back from evaluation

    hi madisons mom i was wondering what your doctor meant by saying that your daughter has a very complicated case of cf? oh i just feel for you ALL so very much. it is so very scary and when the tx happens it is so surreal just so..............WOW. i am saying prayers every day for your...
  4. K

    We're back from evaluation

    <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hi Liza we have never "spoken" but i read your entry re the eval and my heart goes out to you and yours. I have two daughters Kari 26, and Holli 20, and they both have cf. kari has had TWO tx's so far and i know it sounds...
  5. K

    We're back from evaluation

    <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hi Liza we have never "spoken" but i read your entry re the eval and my heart goes out to you and yours. I have two daughters Kari 26, and Holli 20, and they both have cf. kari has had TWO tx's so far and i know it sounds...
  6. K

    We're back from evaluation

    <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hi Liza we have never "spoken" but i read your entry re the eval and my heart goes out to you and yours. I have two daughters Kari 26, and Holli 20, and they both have cf. kari has had TWO tx's so far and i know it sounds...
  7. K

    Frustrated with friends and family

    YOU ARE NOT ALONE!!!!!!!!!!!!!!!!!!!!!!!!!! my daughter has had TWO transplants and is very ill and does not have much time left, struggles every day to just survive one more day plus my only other daughter has cf as well and my ENTIRE family acts like it is no big deal!!! the nurses told me...
  8. K

    Frustrated with friends and family

    YOU ARE NOT ALONE!!!!!!!!!!!!!!!!!!!!!!!!!! my daughter has had TWO transplants and is very ill and does not have much time left, struggles every day to just survive one more day plus my only other daughter has cf as well and my ENTIRE family acts like it is no big deal!!! the nurses told me...
  9. K

    Frustrated with friends and family

    YOU ARE NOT ALONE!!!!!!!!!!!!!!!!!!!!!!!!!! my daughter has had TWO transplants and is very ill and does not have much time left, struggles every day to just survive one more day plus my only other daughter has cf as well and my ENTIRE family acts like it is no big deal!!! the nurses told me...
  10. K

    Wanting to have a baby

    khristina no mayahs dad is not in the picture, he could not handle the cf and transplants. that is another cause for sadness for us because she will have no parents. she will however have us, her family who loves her more than life itself. alls i was trying to say is that mayah has NOT had...
  11. K

    Wanting to have a baby

    khristina no mayahs dad is not in the picture, he could not handle the cf and transplants. that is another cause for sadness for us because she will have no parents. she will however have us, her family who loves her more than life itself. alls i was trying to say is that mayah has NOT had...
  12. K

    Wanting to have a baby

    khristina no mayahs dad is not in the picture, he could not handle the cf and transplants. that is another cause for sadness for us because she will have no parents. she will however have us, her family who loves her more than life itself. alls i was trying to say is that mayah has NOT had...
  13. K

    Wanting to have a baby

    WOW First of all it is not your place to decide whats normal or whats not This forum is here so that we can share experiences w/ others in the same boat. Hey if you think that it is fair to have a child when you have a fatal disease as opposed to MAYBE you'll become ill and die while your...
  14. K

    Wanting to have a baby

    WOW First of all it is not your place to decide whats normal or whats not This forum is here so that we can share experiences w/ others in the same boat. Hey if you think that it is fair to have a child when you have a fatal disease as opposed to MAYBE you'll become ill and die while your...
  15. K

    Wanting to have a baby

    WOW First of all it is not your place to decide whats normal or whats not This forum is here so that we can share experiences w/ others in the same boat. Hey if you think that it is fair to have a child when you have a fatal disease as opposed to MAYBE you'll become ill and die while your...
  16. K

    Wanting to have a baby

    Dear Vicky Your reply to my post was indeed a little harsh. I was merely telling of mine and my daughters experience and did not mean to insinuate that people w/cf do not have the right to have children. My daughter would LOVE to be a survivor, as she has the toughest spirit of ANY one I know...
  17. K

    Wanting to have a baby

    Dear Vicky Your reply to my post was indeed a little harsh. I was merely telling of mine and my daughters experience and did not mean to insinuate that people w/cf do not have the right to have children. My daughter would LOVE to be a survivor, as she has the toughest spirit of ANY one I know...
  18. K

    Wanting to have a baby

    Dear Vicky Your reply to my post was indeed a little harsh. I was merely telling of mine and my daughters experience and did not mean to insinuate that people w/cf do not have the right to have children. My daughter would LOVE to be a survivor, as she has the toughest spirit of ANY one I know...
  19. K

    Wanting to have a baby

    Hi khrystina My daughter Kari is 25 yrs old and has cf and has a 4 yr old daughter Mayah. She was extremely ill when she became pregnant and the docs were astounded that it even happened! She has since had 2 lung tx's and is very ill now and does not have too many years left at this point. I...
  20. K

    Wanting to have a baby

    Hi khrystina My daughter Kari is 25 yrs old and has cf and has a 4 yr old daughter Mayah. She was extremely ill when she became pregnant and the docs were astounded that it even happened! She has since had 2 lung tx's and is very ill now and does not have too many years left at this point. I...
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