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  1. I

    food to lung symptom correlations?

    YUP, same here- dairy, wheat products, and sugar. All seem to have a negative affect on my sinuses, lung health, skin complextion, digestion.
  2. I

    food to lung symptom correlations?

    YUP, same here- dairy, wheat products, and sugar. All seem to have a negative affect on my sinuses, lung health, skin complextion, digestion.
  3. I

    food to lung symptom correlations?

    YUP, same here- dairy, wheat products, and sugar. All seem to have a negative affect on my sinuses, lung health, skin complextion, digestion.
  4. I

    Not taking enzymes?

    I am completely pancreatic insufficient, dont take enzymes, still seem to absorb enough to function. Used to take them as a kid, then stopped in college. My digestion actually improved when I stopped. Each person is an individual and reacts differently I guess.
  5. I

    Not taking enzymes?

    I am completely pancreatic insufficient, dont take enzymes, still seem to absorb enough to function. Used to take them as a kid, then stopped in college. My digestion actually improved when I stopped. Each person is an individual and reacts differently I guess.
  6. I

    Not taking enzymes?

    I am completely pancreatic insufficient, dont take enzymes, still seem to absorb enough to function. Used to take them as a kid, then stopped in college. My digestion actually improved when I stopped. Each person is an individual and reacts differently I guess.
  7. I

    Exercise Tolerance

    Do the best you can with what you've got. Last winter I started out with about 40% FEV. Made myself jog every day until I started heaving or close to passing out. Pushed it and pushed it. Worked up to running a 6K in under an hour. My FEV went up to about 58%. If there is a day I miss...
  8. I

    Exercise Tolerance

    Do the best you can with what you've got. Last winter I started out with about 40% FEV. Made myself jog every day until I started heaving or close to passing out. Pushed it and pushed it. Worked up to running a 6K in under an hour. My FEV went up to about 58%. If there is a day I miss...
  9. I

    Exercise Tolerance

    Do the best you can with what you've got. Last winter I started out with about 40% FEV. Made myself jog every day until I started heaving or close to passing out. Pushed it and pushed it. Worked up to running a 6K in under an hour. My FEV went up to about 58%. If there is a day I miss...
  10. I

    alternatives to prednisone

    I too have nasty asthma related to CF. Spent much of the last ten years with rib fractures from the dry coughing fits. What really helps for me (discovered it during a broken rib bought) is hydrcodone. It gets everything to relax and take a break, which after 16 hours of nonstop coughing...
  11. I

    alternatives to prednisone

    I too have nasty asthma related to CF. Spent much of the last ten years with rib fractures from the dry coughing fits. What really helps for me (discovered it during a broken rib bought) is hydrcodone. It gets everything to relax and take a break, which after 16 hours of nonstop coughing...
  12. I

    alternatives to prednisone

    I too have nasty asthma related to CF. Spent much of the last ten years with rib fractures from the dry coughing fits. What really helps for me (discovered it during a broken rib bought) is hydrcodone. It gets everything to relax and take a break, which after 16 hours of nonstop coughing...
  13. I

    What is your FEV1 Score?

    55% 40 year old female DDF508. Diagnosed at 3 months. Married 15 years, 2 kids : )
  14. I

    What is your FEV1 Score?

    55% 40 year old female DDF508. Diagnosed at 3 months. Married 15 years, 2 kids : )
  15. I

    What is your FEV1 Score?

    55% <br />40 year old female DDF508. <br />Diagnosed at 3 months. <br />Married 15 years, 2 kids : ) <br />
  16. I

    Got the boot from BABY CF CLINIC DAY

    At the adult CF clinic I attend, you are masked the entire time, unless you are in the patient room. Everyone who enters is gowned/gloved, etc. If they DIDNT take these precautions, I would not go the the CF clinic. I never did until I was in my mid-30's because I thought they were too lax...
  17. I

    Got the boot from BABY CF CLINIC DAY

    At the adult CF clinic I attend, you are masked the entire time, unless you are in the patient room. Everyone who enters is gowned/gloved, etc. If they DIDNT take these precautions, I would not go the the CF clinic. I never did until I was in my mid-30's because I thought they were too lax...
  18. I

    Got the boot from BABY CF CLINIC DAY

    At the adult CF clinic I attend, you are masked the entire time, unless you are in the patient room. Everyone who enters is gowned/gloved, etc. If they DIDNT take these precautions, I would not go the the CF clinic. I never did until I was in my mid-30's because I thought they were too lax...
  19. I

    Managing CF and relationships

    My husband and I started dating when he was 15, I was 17. We had a really good relationship, but he never quite "got it" - the being tired sometimes, sick, etc. After 3.5 years we took a break. During that time, he got Lymes disease, experienced paralysis (thankfully not permanant!), and all...
  20. I

    Managing CF and relationships

    My husband and I started dating when he was 15, I was 17. We had a really good relationship, but he never quite "got it" - the being tired sometimes, sick, etc. After 3.5 years we took a break. During that time, he got Lymes disease, experienced paralysis (thankfully not permanant!), and all...
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