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Hi and welcome. Sorry to hear about your diagnosis. It must be a very difficult time for your family but believe me, it will get better. my dd (2 yr old)has the same mutations. the second mutation is not actually very rare, I think it accounts for 2% of all cases, but Steve can confirm that...

Hi and welcome. Sorry to hear about your diagnosis. It must be a very difficult time for your family but believe me, it will get better. my dd (2 yr old)has the same mutations. the second mutation is not actually very rare, I think it accounts for 2% of all cases, but Steve can confirm that...

Hi and welcome. Sorry to hear about your diagnosis. It must be a very difficult time for your family but believe me, it will get better. my dd (2 yr old)has the same mutations. the second mutation is not actually very rare, I think it accounts for 2% of all cases, but Steve can confirm that...

Hi and welcome. Sorry to hear about your diagnosis. It must be a very difficult time for your family but believe me, it will get better. my dd (2 yr old)has the same mutations. the second mutation is not actually very rare, I think it accounts for 2% of all cases, but Steve can confirm that...

Hi and welcome. Sorry to hear about your diagnosis. It must be a very difficult time for your family but believe me, it will get better. <br /> <br />my dd (2 yr old)has the same mutations. the second mutation is not actually very rare, I think it accounts for 2% of all cases, but Steve can...

I have used organic coconut oil with very good results. It is odorless which helps. I also use flaxseed oil, organic butter and sea salt. In terms of recipes my daughter loves avocado and egg salad. She also loves tomatos, so i give her tomato salad with lettuce and pour flaxseed oil and add...

I have used organic coconut oil with very good results. It is odorless which helps. I also use flaxseed oil, organic butter and sea salt. In terms of recipes my daughter loves avocado and egg salad. She also loves tomatos, so i give her tomato salad with lettuce and pour flaxseed oil and add...

I have used organic coconut oil with very good results. It is odorless which helps. I also use flaxseed oil, organic butter and sea salt. In terms of recipes my daughter loves avocado and egg salad. She also loves tomatos, so i give her tomato salad with lettuce and pour flaxseed oil and add...

I have used organic coconut oil with very good results. It is odorless which helps. I also use flaxseed oil, organic butter and sea salt. In terms of recipes my daughter loves avocado and egg salad. She also loves tomatos, so i give her tomato salad with lettuce and pour flaxseed oil and add...

I have used organic coconut oil with very good results. It is odorless which helps. I also use flaxseed oil, organic butter and sea salt. In terms of recipes my daughter loves avocado and egg salad. She also loves tomatos, so i give her tomato salad with lettuce and pour flaxseed oil and add...

What's an Well, here in France RT plays a major role in the treatment. They make house calls and do your CPT on a daily basis. They are actually quite knowledgable about CF and can often spot that something is brewing before one becomes aware of it (particularly helpful when one has a kid w/cf).

What's an Well, here in France RT plays a major role in the treatment. They make house calls and do your CPT on a daily basis. They are actually quite knowledgable about CF and can often spot that something is brewing before one becomes aware of it (particularly helpful when one has a kid w/cf).

What's an Well, here in France RT plays a major role in the treatment. They make house calls and do your CPT on a daily basis. They are actually quite knowledgable about CF and can often spot that something is brewing before one becomes aware of it (particularly helpful when one has a kid w/cf).

What's an Well, here in France RT plays a major role in the treatment. They make house calls and do your CPT on a daily basis. They are actually quite knowledgable about CF and can often spot that something is brewing before one becomes aware of it (particularly helpful when one has a kid w/cf).

What's an Well, here in France RT plays a major role in the treatment. They make house calls and do your CPT on a daily basis. They are actually quite knowledgable about CF and can often spot that something is brewing before one becomes aware of it (particularly helpful when one has a kid w/cf).

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i> Yeah, I also got the message from the CFF that it was approved this week. Hooray! I have heard from my CF doctor that the studies were done with the e-flow, so I'm not sure what this Altera device is. Anyone...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i> Yeah, I also got the message from the CFF that it was approved this week. Hooray! I have heard from my CF doctor that the studies were done with the e-flow, so I'm not sure what this Altera device is. Anyone...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i> Yeah, I also got the message from the CFF that it was approved this week. Hooray! I have heard from my CF doctor that the studies were done with the e-flow, so I'm not sure what this Altera device is. Anyone...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i> Yeah, I also got the message from the CFF that it was approved this week. Hooray! I have heard from my CF doctor that the studies were done with the e-flow, so I'm not sure what this Altera device is. Anyone...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i> <br /> <br />Yeah, I also got the message from the CFF that it was approved this week. Hooray! I have heard from my CF doctor that the studies were done with the e-flow, so I'm not sure what this Altera device...