Search results

  1. M

    Mixed news

    Yup, December was the last PFTs for me. I was at National Jewish in Denver. I am not sure what the placbebo is. I really want the drug, not the placebo...grrr. Thanks for the heads-up about meal timing. I'll let you know what I grow. The pulmo will do an AFB culture--everyone really wants...
  2. M

    Mixed news

    Yup, December was the last PFTs for me. I was at National Jewish in Denver. I am not sure what the placbebo is. I really want the drug, not the placebo...grrr. Thanks for the heads-up about meal timing. I'll let you know what I grow. The pulmo will do an AFB culture--everyone really wants...
  3. M

    Mixed news

    Yup, December was the last PFTs for me. I was at National Jewish in Denver. <br /> <br />I am not sure what the placbebo is. I really want the drug, not the placebo...grrr. <br /> <br />Thanks for the heads-up about meal timing. I'll let you know what I grow. The pulmo will do an AFB...
  4. M

    Mixed news

    I went to a pulmo check-up today. The good news is that I am going to be evaluated for a 12 month Mannitol trial in people with bronchiectasis. I have been lusting for this stuff since I heard about it from Australians with bronchiectasis on Bronchiectasis R Us. (It is also known as...
  5. M

    Mixed news

    I went to a pulmo check-up today. The good news is that I am going to be evaluated for a 12 month Mannitol trial in people with bronchiectasis. I have been lusting for this stuff since I heard about it from Australians with bronchiectasis on Bronchiectasis R Us. (It is also known as...
  6. M

    Mixed news

    I went to a pulmo check-up today. The good news is that I am going to be evaluated for a 12 month Mannitol trial in people with bronchiectasis. I have been lusting for this stuff since I heard about it from Australians with bronchiectasis on Bronchiectasis R Us. (It is also known as...
  7. M

    Mixed news

    I went to a pulmo check-up today. The good news is that I am going to be evaluated for a 12 month Mannitol trial in people with bronchiectasis. I have been lusting for this stuff since I heard about it from Australians with bronchiectasis on Bronchiectasis R Us. (It is also known as...
  8. M

    Mixed news

    I went to a pulmo check-up today. <br /> <br />The good news is that I am going to be evaluated for a 12 month Mannitol trial in people with bronchiectasis. I have been lusting for this stuff since I heard about it from Australians with bronchiectasis on Bronchiectasis R Us. (It is also...
  9. M

    Oral Antibiotics

    Cipro is useful against PA (and Anthrax). I don't know about Levaquin. Avelox is not for PA but is sometimes used for TB and MAC. They are all quinolones. 2 cents ___ Melissa, 34, bronchiectasis (no CF)
  10. M

    Oral Antibiotics

    Cipro is useful against PA (and Anthrax). I don't know about Levaquin. Avelox is not for PA but is sometimes used for TB and MAC. They are all quinolones. 2 cents ___ Melissa, 34, bronchiectasis (no CF)
  11. M

    Oral Antibiotics

    Cipro is useful against PA (and Anthrax). I don't know about Levaquin. Avelox is not for PA but is sometimes used for TB and MAC. They are all quinolones. 2 cents ___ Melissa, 34, bronchiectasis (no CF)
  12. M

    Oral Antibiotics

    Cipro is useful against PA (and Anthrax). I don't know about Levaquin. Avelox is not for PA but is sometimes used for TB and MAC. They are all quinolones. 2 cents ___ Melissa, 34, bronchiectasis (no CF)
  13. M

    Oral Antibiotics

    Cipro is useful against PA (and Anthrax). <br />I don't know about Levaquin. <br />Avelox is not for PA but is sometimes used for TB and MAC. They are all quinolones. <br /> <br />2 cents <br /> <br />___ <br />Melissa, 34, bronchiectasis (no CF)
  14. M

    Unable to take antifungals

    There is an old-wive's tale about honey (apply, wait 2-3 min, rinse). I won't explain the desperation that led me to try it, but I had shockingly positive results.
  15. M

    Unable to take antifungals

    There is an old-wive's tale about honey (apply, wait 2-3 min, rinse). I won't explain the desperation that led me to try it, but I had shockingly positive results.
  16. M

    Unable to take antifungals

    There is an old-wive's tale about honey (apply, wait 2-3 min, rinse). I won't explain the desperation that led me to try it, but I had shockingly positive results.
  17. M

    Unable to take antifungals

    There is an old-wive's tale about honey (apply, wait 2-3 min, rinse). I won't explain the desperation that led me to try it, but I had shockingly positive results.
  18. M

    Unable to take antifungals

    There is an old-wive's tale about honey (apply, wait 2-3 min, rinse). I won't explain the desperation that led me to try it, but I had shockingly positive results.
  19. M

    Is it CF?

    I am sorry to hear of all your problems. I would go for any testing they offer you and do not be content with sweat testing alone for a CF neg diagnosis. Ultimately you need a full gene sequencing (see Ambry genetics) and you have to have enough of the right issues to have insurance pay for...
  20. M

    Is it CF?

    I am sorry to hear of all your problems. I would go for any testing they offer you and do not be content with sweat testing alone for a CF neg diagnosis. Ultimately you need a full gene sequencing (see Ambry genetics) and you have to have enough of the right issues to have insurance pay for...
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