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  1. H

    Liver Issues

    My last yearly labs came back showing "elevated liver enzymes". Also something suggestive in my blood work saying I might be more prone to bleeding issues. So far they are just saying "recheck these again next visit,".
  2. H

    Liver Issues

    My last yearly labs came back showing "elevated liver enzymes". Also something suggestive in my blood work saying I might be more prone to bleeding issues. So far they are just saying "recheck these again next visit,".
  3. H

    Daughter Exposed to TONS of dry dirt in the air camping

    I grew up in a fairly dry environment with alot of dust. Dry vs wet seems as far as humidity seems to only effect how thin the mucus is. IE wet easier to bring up, dry it tends to be a bit harder. Unless your dealing with dust levels that are on par with say.. wood shops. If your dealing with...
  4. H

    Daughter Exposed to TONS of dry dirt in the air camping

    I grew up in a fairly dry environment with alot of dust. Dry vs wet seems as far as humidity seems to only effect how thin the mucus is. IE wet easier to bring up, dry it tends to be a bit harder. Unless your dealing with dust levels that are on par with say.. wood shops. If your dealing with...
  5. H

    O2 sats

    How do you feel when you wake up, do you wake up rested refreshed? Common early sign that your O2 is falling while asleep is waking up having slept well but just not feeling rested. But then again all sleep issues have the "You woke up not feeling rested." as there first hint that something is...
  6. H

    O2 sats

    How do you feel when you wake up, do you wake up rested refreshed? Common early sign that your O2 is falling while asleep is waking up having slept well but just not feeling rested. But then again all sleep issues have the "You woke up not feeling rested." as there first hint that something is...
  7. H

    Port Questions and Memory Loss

    Biggest side effect I've had is mine itches from time to time. Other wise I would say go for it. Mine doesn't get in the way, unless accessed then its just cause the extra bulk. I've had a G tube and those get in the way more then my port does. As far as pain goes it will hurt for a week or so...
  8. H

    Port Questions and Memory Loss

    Biggest side effect I've had is mine itches from time to time. Other wise I would say go for it. Mine doesn't get in the way, unless accessed then its just cause the extra bulk. I've had a G tube and those get in the way more then my port does. As far as pain goes it will hurt for a week or so...
  9. H

    Will VX809/770 be effective in reducing mucous production?

    Some of it is age, some if it is also you've likely developed more allergies. Seems to be the case for me any way.
  10. H

    Will VX809/770 be effective in reducing mucous production?

    Some of it is age, some if it is also you've likely developed more allergies. Seems to be the case for me any way.
  11. H

    What is the best way for a non-CFer to react to you and/or CF?

    I don't mind the "are you ok?" question, anybody that hangs around a CF patent enough figures it out fairly quickly that.. we are ok. What I don't like is I'll be doing something or attempting to help somebody else out. IE carry a bag of trash, help them move, help in the kitchen. And then get...
  12. H

    What is the best way for a non-CFer to react to you and/or CF?

    I don't mind the "are you ok?" question, anybody that hangs around a CF patent enough figures it out fairly quickly that.. we are ok. What I don't like is I'll be doing something or attempting to help somebody else out. IE carry a bag of trash, help them move, help in the kitchen. And then get...
  13. H

    First CF Hemoptysis

    Yeah it can freak you out the first time, if you've had a good sized amount of blood come up and not experienced with it be-for, at least checking in with your CF clinic is a good idea. You might want to look at spacing out some of your morning meds a little if this becomes an on going problem...
  14. H

    First CF Hemoptysis

    Yeah it can freak you out the first time, if you've had a good sized amount of blood come up and not experienced with it be-for, at least checking in with your CF clinic is a good idea. You might want to look at spacing out some of your morning meds a little if this becomes an on going problem...
  15. H

    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    Yeah 5-10% is a big chunk, frankly I would just like to see a decrease in my cough.
  16. H

    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    Yeah 5-10% is a big chunk, frankly I would just like to see a decrease in my cough.
  17. H

    Denied by Social Security

    yeah not uncommon with a CFer to have volumes of charts if they are going though a rougher time. Been a few times in my life I've averaged better then a volume of chart a month. lab's, tests, Ex rays, sergery's nurses notes. Nurses notes from a day in the hospital alone stack up fast.
  18. H

    Denied by Social Security

    yeah not uncommon with a CFer to have volumes of charts if they are going though a rougher time. Been a few times in my life I've averaged better then a volume of chart a month. lab's, tests, Ex rays, sergery's nurses notes. Nurses notes from a day in the hospital alone stack up fast.
  19. H

    Pfts's and weight changes

    Within error limits is accurate. I would also be tracking the accutal valume of air moved rather then the % of "expected" I've seen my waight shift 3-4 pounds effect my PFT by 6-10%.In this case with such a small waight loss, its likely dehidration and water waight loss. But as others have said...
  20. H

    Pfts's and weight changes

    Within error limits is accurate. I would also be tracking the accutal valume of air moved rather then the % of "expected" I've seen my waight shift 3-4 pounds effect my PFT by 6-10%.In this case with such a small waight loss, its likely dehidration and water waight loss. But as others have said...
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