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  1. T

    What is your FEV1 Score?

    <p><br>Mine is 50-49% on a good day. When I am sick it is 43% on a good day. <p>I use O2 when I am having lung issues, and at night if I wake up tired too much. <p>I am 60 years old and counting. Have started Cayston and think it really does help.
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    " Foreverland "

    <br> I saw the trailer on youtube. Now have to wait until 2012 to see it.
  3. T

    " Foreverland "

    <br>I saw the trailer on youtube. Now have to wait until 2012 to see it.
  4. T

    " Foreverland "

    <br>I saw the trailer on youtube. Now have to wait until 2012 to see it.
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    Farms, hay, manure, IgE, etc...

    I have lived around horses all my life. I am now 60. Have shown horses and cared for them, mucked out stalls, hayed and fed, mixed grain ect. Riding horses is very therepudic for CF.I trained horses for myself and others. Though I am not able to now it was how I stayed so healthy and my doctor...
  6. T

    Farms, hay, manure, IgE, etc...

    I have lived around horses all my life. I am now 60. Have shown horses and cared for them, mucked out stalls, hayed and fed, mixed grain ect. Riding horses is very therepudic for CF.I trained horses for myself and others. Though I am not able to now it was how I stayed so healthy and my doctor...
  7. T

    Farms, hay, manure, IgE, etc...

    I have lived around horses all my life. I am now 60. Have shown horses and cared for them, mucked out stalls, hayed and fed, mixed grain ect. <br />Riding horses is very therepudic for CF.I trained horses for myself and others. Though I am not able to now it was how I stayed so healthy and my...
  8. T

    Coughing up blood?

    I agree with everyone else not to worry on just a smidgeon of blood. I have coughed up quite a bit and my doctor said if it didn't stop after 30 minutes to call him...or go to er. It usually stops withing 10 minutes.
  9. T

    Coughing up blood?

    I agree with everyone else not to worry on just a smidgeon of blood. I have coughed up quite a bit and my doctor said if it didn't stop after 30 minutes to call him...or go to er. It usually stops withing 10 minutes.
  10. T

    Coughing up blood?

    I agree with everyone else not to worry on just a smidgeon of blood. <br />I have coughed up quite a bit and my doctor said if it didn't stop after 30 minutes to call him...or go to er. <br />It usually stops withing 10 minutes. <br />
  11. T

    Pancreatic sufficiency and constipation.

    Seems this problem is not toatally mine. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I take miralax once a day but a triple dose...and dulcolax at night. I am almost 60 so no only am I slowing down so is my gut. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Oh...
  12. T

    Pancreatic sufficiency and constipation.

    Seems this problem is not toatally mine. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I take miralax once a day but a triple dose...and dulcolax at night. I am almost 60 so no only am I slowing down so is my gut. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Oh...
  13. T

    Pancreatic sufficiency and constipation.

    Seems this problem is not toatally mine. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I take miralax once a day but a triple dose...and dulcolax at night. I am almost 60 so no only am I slowing down so is my gut. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Oh...
  14. T

    Nebuliser

    I use a Parineb. I don't have to use cayston so the Eflow is not neccesary for me. The parineb has a fine mist and does pretty well. My neb machine is whatever the insurance will pay for. I have medicare so it takes care of it for me. The neb machines cost anywhere between 50 and $100. (I think)...
  15. T

    Nebuliser

    I use a Parineb. I don't have to use cayston so the Eflow is not neccesary for me. The parineb has a fine mist and does pretty well. My neb machine is whatever the insurance will pay for. I have medicare so it takes care of it for me. The neb machines cost anywhere between 50 and $100. (I think)...
  16. T

    Nebuliser

    I use a Parineb. I don't have to use cayston so the Eflow is not neccesary for me. The parineb has a fine mist and does pretty well. My neb machine is whatever the insurance will pay for. I have medicare so it takes care of it for me. The neb machines cost anywhere between 50 and $100. (I think)...
  17. T

    Getting sick while on Tobi?

    When I was on toby I had kidney failure. I felt terrible the last time I was in the hospital on it and got out feeling none better. The next time I was in the hospital they gave me toby again and that the when I had kidney failure. My advice is to get your kidney functions checked. If they are...
  18. T

    Getting sick while on Tobi?

    When I was on toby I had kidney failure. I felt terrible the last time I was in the hospital on it and got out feeling none better. The next time I was in the hospital they gave me toby again and that the when I had kidney failure. My advice is to get your kidney functions checked. If they are...
  19. T

    Getting sick while on Tobi?

    When I was on toby I had kidney failure. I felt terrible the last time I was in the hospital on it and got out feeling none better. <br />The next time I was in the hospital they gave me toby again and that the when I had kidney failure. My advice is to get your kidney functions checked. If...
  20. T

    Friend w/CF

    All of us kids had CF. Growing up it wasn't a problem. Mike coughed and coughed I never got his bugs. Kerry the same thing. I have been around lots and lots of CF'ers and not had a problem. I have given lots of hugs and I am ok. But I agree, do not throw caution to the wind. Always be safe than...
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