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Same as the others...my son was put on Bactrium and thank goodness he responded to it. Hope you have the same success.

Thanks for all of your input on the stick....yesterday stunk. He was so tramatized by the whole thing....I'm glad it's over. We have our visit with the endocrinologist today to review the results. Does anyone know what levels are "good"? He was running between 88 and 149. I can't even...

We get it! That's exciting! We usually celebrate weight gain by letting my son pick ANY resturant he wants to go to. He loves to go to 5 and Diner for pancakes. Gross huh? He loves breakfast for dinner! Tell her she's fabulous and good work from us!

My 7 year old has symptoms of CFRD and they're having me check his blood glucose levels all day today for the first time. He's pretty nervous and I was wondering if there were any helpful hints for him to make this easier. I let him poke me last night....he seemed ok but I have to do him this...

My 7 year old CFer has always had dehydration issues and drinks TONS of water and gatorade everyday. Recently he has developed a severe "dry mouth" with this gross sticky junk all over his teeth. It's ALWAYS there and he has to brush his teeth all the time. Has anyone ever had this? His...

I am proofing a book that being written about this topic specifically. How to empower children w/chronic illness to take control of themselves and make good choices. Here's what it says to do. First, show empathy for her situation..."Honey, I know it must be a bummer to have to eat so much...

We make photo thank you cards....like the ones you send out at Xmas. You can buy them fairly cheap at Costco/Sam's club and do them online.

Do ou have any miralax on hand? Take some if you do.

I read that you're starting both Pulmozyme and Tobi. Did your doctor review how to administer and how NOT to mix the neb cups before disinfecting? And, did he explain the order in which you should be taking the meds? If you need help, please email me. My son has been on both for awhile...

I agree! I want him to be a fighter and optimistic....not doomed and gloomed. I noticed your sign off...and one angel. Did you lose a child? I have lost one too. His name was Sammy. I was diagnosed with lupus during my first pregnancy and delivered Sam when I was 5 months pregnant. He was...

I agree!!!! Thanks

I am new to this website and noticed that a lot of you have children my son's age and a lot w/teenagers. My son has never had any issues with his meds up until recently. He's mad, angry and says things like "I hate my life, I hate CF, I hate taking meds....mommy, when are they going to find a...

We follow the same sequence as "amy". Xopenex, Pulmozyme, vest, then Tobi last. And you probbly should stop mixing the albuterol in with it as mentioned by another user.

I too am a stepmom to two other children and I can't even imagine saying somthing like that! Shame on her!!!!!! That was thoughtless and very uncompassionate! Do what you can....your father will NEVER regret the measures he's taking to do what he needs to for you. That's what real parents...