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This is something I have been struggling with myself. My general opinions on vaccines are negative. We do not vaccinate here. HOWEVER, with Sam in our lives now, Pertussis conversations in our home have been very different lately. The Pertussis vaccine does not eliminate the chance of...

I imagine Sam's recommended diet is similar for most of those with CF. What foods do you commonly eat that follow your recommended dietery guidelines? Recipes? I'm learning to seriously utilize my crock pot, buy in bulk, make from scratch, and make things last for less money. As I learn to do...

Still researching...found this site: http://www.msm-info.com/

My Dad has found, through research, a naturally ocurring compound called MSM. Naturally ocurrs in the body and in many foods. Basically a sulphur that our body needs. Why does it POTENTIALLY relate to CF? Because MSM affects cell membranes, especially mucous membranes. It basically naturally...

My thoughts are with you. I'm sorry that there are no words to fix a heart.

My thoughts are with you. I'm sorry that there are no words to fix a heart.

Yea, more or less. Now that you mention it we definitely see this worsen around illness. Oxygen dropping...I wonder if we should have him do vest treatments in the middle of the night? He's blessed with the ability to resume sleep after being woken, thirty minutes total awake its better than an...

Yea, more or less. Now that you mention it we definitely see this worsen around illness. Oxygen dropping...I wonder if we should have him do vest treatments in the middle of the night? He's blessed with the ability to resume sleep after being woken, thirty minutes total awake its better than an...

We have noticed that during a certain span of time nealry every night Sam gets heat/sweaty and coughing spells. Does this happen to you? What do you do? I feel bad that I cannot do much other than go back to sleep. Meanwhile, he is coughing for sometimes an hour or more on end, showering off the...

We have noticed that during a certain span of time nealry every night Sam gets heat/sweaty and coughing spells. Does this happen to you? What do you do? I feel bad that I cannot do much other than go back to sleep. Meanwhile, he is coughing for sometimes an hour or more on end, showering off the...

At nearly 23 years old, this is quite a life change for him (and everyone else in his life.) I don't recall exact gene mutations, I don't know what most of the words are skimming through threads on here. I've done a bit of research on my own, but I feel rather powerless to help him. He just...

At nearly 23 years old, this is quite a life change for him (and everyone else in his life.) I don't recall exact gene mutations, I don't know what most of the words are skimming through threads on here. I've done a bit of research on my own, but I feel rather powerless to help him. He just...