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Kay: My son had 3 ports in his life and he said they were wonderful! A lot more comfortable than pic lines. Plus it is easier to move around because there is nothing in your arms. I recommend it. momofjosh

thelizardqueen: Your comment on how you can't control your disease but tatoos are something you can control hits home! My son Josh, who passed away 4 weeks ago, had 5 tatoos. I told him he couldn't get any until he turned 18 and he did exactly that. He never said what you said about his tatoos...

thelizardqueen: Your comment on how you can't control your disease but tatoos are something you can control hits home! My son Josh, who passed away 4 weeks ago, had 5 tatoos. I told him he couldn't get any until he turned 18 and he did exactly that. He never said what you said about his tatoos...

Allie: I am so thankful for this website! I wish I had found it a long time ago while Josh was still here and we were dealing with tons of medical stuff. I first found it when when Josh's doctor suggested he go on hospice. (a few weeks before he died) I do have to talk about him a lot because I...

Allie: I am so thankful for this website! I wish I had found it a long time ago while Josh was still here and we were dealing with tons of medical stuff. I first found it when when Josh's doctor suggested he go on hospice. (a few weeks before he died) I do have to talk about him a lot because I...

I couldn't even imagine how much it was going to hurt after Josh passed. I used to think about it, but the reality is so hard. Of course today is Valentines Day so I think about him and miss him because I always used to buy my kids something and leave it on the table for them before school. Josh...

I couldn't even imagine how much it was going to hurt after Josh passed. I used to think about it, but the reality is so hard. Of course today is Valentines Day so I think about him and miss him because I always used to buy my kids something and leave it on the table for them before school. Josh...

Gin Thanks for your note...I went to the website. It is wonderful!! I didn't have a lot of time so I want to go back there, my 17 year old daughter is very sick right now.(just what we all need right now!) I will be talking to you again. It is so nice to have somewhere to go to talk freely about...

Gin Thanks for your note...I went to the website. It is wonderful!! I didn't have a lot of time so I want to go back there, my 17 year old daughter is very sick right now.(just what we all need right now!) I will be talking to you again. It is so nice to have somewhere to go to talk freely about...

Tomorrow it will be 3 weeks since my son Josh passed, it is getting harder instead of easier. I know it is still so soon, but I can't stand how I feel!! It hurts so much!!!! I don't want to think of him because I keep crying, but I want to think of him and look at pictures because I miss him so...

Tomorrow it will be 3 weeks since my son Josh passed, it is getting harder instead of easier. I know it is still so soon, but I can't stand how I feel!! It hurts so much!!!! I don't want to think of him because I keep crying, but I want to think of him and look at pictures because I miss him so...

I am new on this site, but I want to remember my son Josh who passed away January 19, 2006. I miss him terribly!!! He had a very hard life but was a wonderful, brave person who is very loved and missed!

I am new on this site, but I want to remember my son Josh who passed away January 19, 2006. I miss him terribly!!! He had a very hard life but was a wonderful, brave person who is very loved and missed!

To anonymous and JazzysMom: Thanks for replying. My 2 yr old son says Josh is in the hospital. Josh was in the hospital so much, so that it is normal for my little one. I guess I am glad he thinks that. I am surprised because Josh's room is now a playroom for my little one, and he is in there...

To anonymous and JazzysMom: Thanks for replying. My 2 yr old son says Josh is in the hospital. Josh was in the hospital so much, so that it is normal for my little one. I guess I am glad he thinks that. I am surprised because Josh's room is now a playroom for my little one, and he is in there...

I posted a message a few weeks ago about my son going on hospice. Well, unfortunately he passed away two weeks ago (Jan. 19) We did end up with hospice in our home for 6 days. My son wanted to die at home. Even though his whole life I knew he would die at a young age, this is so much harder than...

I posted a message a few weeks ago about my son going on hospice. Well, unfortunately he passed away two weeks ago (Jan. 19) We did end up with hospice in our home for 6 days. My son wanted to die at home. Even though his whole life I knew he would die at a young age, this is so much harder than...

Thank you for responding to me. What do you do for Hospice? I would like anything you can share about this experience we are going through. We live in Racine, WI. There is so much going on in my head that it is spinning! I would like encouraging words from anyone. I was nervous that our decision...

I am new here and would like support from people who are going through the same thing my son and I are. My son is 21 years old and very sick. The doctor has said he is in the final stages of CF of and has recommended Hospice Care at home so he doesn't have to spend so much time in the hospital...