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LEZLY UPDATE 11:15PM Monday: They've locked down ICU... Just before we had to leave, Lez's vital signs are still stable... she's moving her hands and arms... something she was unable to do all day... she responded by squeezing each of our hands when prompted to do so, also unable to do all...

Abby usually coughs at the beginning and then she eats me out of house and home and her face swells up like a little marshmallow :)

You always crack me up!! That's exactly what Michael said when I told him!! No, not going to call because I do know the possibility that they just didn't get a good swab. But every swab for the last 2-3 years has managed to come up with MRSA :) I'm trying to be good LOL

Abby's nurse just called with the results of her throat culture and her liver function. She normally keeps MRSA, h-flu, and strep-pnuemo on occasion. Today her liver function is normal and her throat culture is NORMAL!!!! Praise God!!!! Lets see what her dr has to say about this :) So...

I agree with everyone. Look into getting on the assistance programs, they really do save you a fortune. It will be hard at first, but before long it will just be another bill that you will become use to paying...kinda like a utility bill. It is overwhelming at first though!! Hang in there :)

I just read from Frank that the CF Foundation has removed the Gene Therapy from the Drug Pipeline. I looked at it 2 weeks ago before Abby's appt and it was still there. Very Sad news!! :'(

Sorry Marci, I just saw this post!! Yes we are very excited!! We are going to do another sweat test because her Dr at TX Childrens believes that the sweat drop is because we went to a different CF accredited center to do the test. We went to Scott & White to get "real" #'s, if you remember TX...

LEZLY UPDATE 4:35PM Monday: this afternoon things got a little rough... Lez's blood pressure started dropping and they had to start an iv to try and bring it up... Not sure what caused it... The resp therapist later tried to suction her lungs and while doing so, yellowish liquid started coming...

Wow Ed!! I had no idea!! I am sorry to hear about your brothers!! Your poor parents, luckily they have you. And just from what I have learned through your post you seem to be quite the comedian! Glad to hear the Kaly is working for you!! I also wonder if attitude has anything to do with...

LEZLY UPDATE 10:25AM Monday: so far it's been a sleepy day here... No blood gases test was done last night but I'm guessing her CO2 level is still high... She's pretty much out of it but she has responded to my voice and turned her head and tried to open her eyes... Today would be a good day for...

LEZLY UPDATE 9:20AM Sunday: LEZLY had a pretty good night according to the night nurse... Her vitals were pretty stable and the volume of air thru the lungs per minute has improved... Her CO2 level is still above 130 but no telling how high it was yesterday (may have been 160 then and just above...

LEZLY UPDATE 11PM Thursday: Dr N said X-rays and blood work showed much improvement in just 24 hrs time.....so thank you for the prayers! We're gonna stay on the plan that we're on for now. Wade and I have come home for a few days for some much needed rest....no worries tho, Lez isn't by...

Love this!!! Can't wait!! It will be such an asset!!

Well the article I saw on it the adults dressed up and went door to door with their child. They had small pamphlets to hand out about CF. While the kids got candy, the adults got loose change...they said they raised $400. I figured since I will be out with my kids anyway might as well. :)

I wanted to bring this thread back to life because it had some really good ideas! Please if you have anymore ideas to add, I am on the hunt for some good fundraising ideas :) This year I am looking into: Bake Sale- we've done before and usually raise $1,000 Baseball Tournament - new to me...

Stacey...I have chills!! What an amazing story!! Thank you so much for sharing!! God is so good!!!(L)

I think she goes by IG. Try that. :)

Hi Marina!! I totally agree with Gemma, soon you will be a pro! :) The first year was the hardest. It is just so much to take in at first! As soon as I would think OK I got this....CF would throw me a new curve ball. But every curve ball taught me a valuable lesson. I promise things will...

Congratulations!! I hope you are feeling better! It is always so very nice to get home to your very own bed and your things! I love vegging on the couch with my kiddos when we get home from a hospital stay and eating everything in sight!! :)

LEZLY UPDATE 11:30am Tuesday: a bit of a sleepy day today... A minor equipment malfunction (a vent connection popped apart) caused Lez to panic... It was before ICU opened this morning... They had to give her a med to calm her down and then followed it at 9 with another regular scheduled med to...