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  1. J

    smoking spouse

    This probably won't help any because I know how extremely different each CF case is..but we were told that even if someone went outside to smoke that it would still be on their clothes, breath, and hair. They said if we can smell it at all, then there are particles in the air that are going...
  2. J

    Going for a sweat test, questions

    I hope that they get you some answers soon so that you are not just sitting there left to worry. Please let us know how it turns out. And I pray that you get the answers that you are looking for. The answer that we got was not the one we were looking for, but am greatful that we received so...
  3. J

    Going for a sweat test, questions

    I hope that they get you some answers soon so that you are not just sitting there left to worry. Please let us know how it turns out. And I pray that you get the answers that you are looking for. The answer that we got was not the one we were looking for, but am greatful that we received so...
  4. J

    Going for a sweat test, questions

    I hope that they get you some answers soon so that you are not just sitting there left to worry. Please let us know how it turns out. And I pray that you get the answers that you are looking for. The answer that we got was not the one we were looking for, but am greatful that we received so...
  5. J

    Scientific Update Meeting (CFF)

    Would you mind telling us a little bit more about what they told you about the vx770 & vx809? I am so interested in finding out how it is going. What a spectacular opportunity sounds like it must have been a blast! And isn't it wonderful to have a clinic team that you love!!
  6. J

    Scientific Update Meeting (CFF)

    Would you mind telling us a little bit more about what they told you about the vx770 & vx809? I am so interested in finding out how it is going. What a spectacular opportunity sounds like it must have been a blast! And isn't it wonderful to have a clinic team that you love!!
  7. J

    Scientific Update Meeting (CFF)

    Would you mind telling us a little bit more about what they told you about the vx770 & vx809? I am so interested in finding out how it is going. <br /> <br />What a spectacular opportunity sounds like it must have been a blast! And isn't it wonderful to have a clinic team that you love!!
  8. J

    Tips for Hospital Stays for Babies/Toddlers

    We have had nurses miss giving Abby her IV meds several times which was no big deal we just reminded them that it was time, I only had one nurse argue with me. So very important to know what meds are due when. We also had one come in to do her vitals in the middle of the night and instead of...
  9. J

    Tips for Hospital Stays for Babies/Toddlers

    We have had nurses miss giving Abby her IV meds several times which was no big deal we just reminded them that it was time, I only had one nurse argue with me. So very important to know what meds are due when. We also had one come in to do her vitals in the middle of the night and instead of...
  10. J

    Tips for Hospital Stays for Babies/Toddlers

    We have had nurses miss giving Abby her IV meds several times which was no big deal we just reminded them that it was time, I only had one nurse argue with me. So very important to know what meds are due when. We also had one come in to do her vitals in the middle of the night and instead of...
  11. J

    Hi

    Oh and FYI that I almost forgot and they may have told you..Tobi can kill any fish that you have in your home. I found that out when I went and stayed with a relative one time. <img src="i/expressions/face-icon-small-sad.gif" border="0">
  12. J

    Hi

    Oh and FYI that I almost forgot and they may have told you..Tobi can kill any fish that you have in your home. I found that out when I went and stayed with a relative one time. <img src="i/expressions/face-icon-small-sad.gif" border="0">
  13. J

    Hi

    Oh and FYI that I almost forgot and they may have told you..Tobi can kill any fish that you have in your home. I found that out when I went and stayed with a relative one time. <img src="i/expressions/face-icon-small-sad.gif" border="0">
  14. J

    Confused! Son newly diagnosed

    Bless your heart!! The clinic in Temple is on the list, I just prefer TX Childrens because they are amazing! How did his sweat test come out? I hope you can find some answers as to what your son has so you can start working to make him better. Keep us updated and God Bless.
  15. J

    Confused! Son newly diagnosed

    Bless your heart!! The clinic in Temple is on the list, I just prefer TX Childrens because they are amazing! How did his sweat test come out? I hope you can find some answers as to what your son has so you can start working to make him better. Keep us updated and God Bless.
  16. J

    Confused! Son newly diagnosed

    Bless your heart!! The clinic in Temple is on the list, I just prefer TX Childrens because they are amazing! How did his sweat test come out? I hope you can find some answers as to what your son has so you can start working to make him better. Keep us updated and God Bless.
  17. J

    Going for a sweat test, questions

    Every childs symptoms are different. There can be kids that just mainly have bowel issues and kids that mainly have lung issues or both. Here is my story..My daughters poop would stink anyone out of the room and they were excessive. Her stomach would also swell until I thought it would burst...
  18. J

    Going for a sweat test, questions

    Every childs symptoms are different. There can be kids that just mainly have bowel issues and kids that mainly have lung issues or both. Here is my story..My daughters poop would stink anyone out of the room and they were excessive. Her stomach would also swell until I thought it would burst...
  19. J

    Going for a sweat test, questions

    Every childs symptoms are different. There can be kids that just mainly have bowel issues and kids that mainly have lung issues or both. Here is my story..My daughters poop would stink anyone out of the room and they were excessive. Her stomach would also swell until I thought it would burst...
  20. J

    Looking for Answers & Others

    Abby's surgeries are just day surgeries, all of them have been so far. She is the best little trooper in the world, although I have a very sneaky suspicion that she has a very high pain tolerance <img src="i/expressions/face-icon-small-smile.gif" border="0">. She never complains, in fact she...
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