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  1. J

    We can do this!

    Guys/Gals, 2 years ago, Julie's Dream Team challenged conventional wisdom. Do we beg people to give cash....write a check to the CF Foundation? Or........Could we ask people to spend their money on themselves, helping to find a cure for Cystic Fibrosis at the same time? We NEVER thought that...
  2. J

    2015!

    http://www.sdentertainer.com/lifestyle/health-wellness/cystic-fibrosis-cure-getting-closer-at-san-diego-lab/ PUSH FORWARD. WE ARE CLOSE!!! Roy E. Ice Julie's Dream Team www.juliesdreamteam.com
  3. J

    First royalty check sent!

    Just wanted to show you all that Lulu.com has sent the first royalty check for "Julie: The Courage to Breathe" to the CF Foundation. Amazon.com is next to report out. I think everyone whose life this disease touches should pick up a copy. It's available on Kindle and Nook as well. Excerpts...
  4. J

    112

    112. That's the number of pages in Julie: The Courage to Breathe. Sales of Julie's amazingly courageous story have been great but I find myself thinking how odd it is that, of all of those in the world that want a cure for Cystic Fibrosis...and my willingness to give 100% of all royalties to...
  5. J

    It's Time for the Cure

    Guys, For the past 20 years, I've had CF be a part of my life. Reading this forum, while helpful will never lead to a cure. It's going to take money for research....and you know we're close to CF standing for Cure Found. For goodness sakes...pick up a copy of my Julie's story: Julie: The...
  6. J

    Julie: The Courage to Breathe

    All, For those that don't know, I wrote my Julie's story of Cystic Fibrosis and her ultimate transplant. I did so because I believe those with CF deserve a cure. I have directed the publisher to direct 100% of my author royalties to the CF Foundation. Julie: The Courage to Breathe is...
  7. J

    Math

    I've done the math folks. There are 9 million of us that LOVE the 30,000 (70,000 world-wide). I've seen the pain associated with the loss of loved ones to this disease. Hell, I was inches away from being one of those that lost a loved one to CF. By God's grace, it didn't happen. I spoke...
  8. J

    Fat Kid

    I wanted to tell you a quick story about a fat kid. That fat kid is me, Roy Ice. When I was 16, I met a girl that coughed. She coughed A LOT. Eight years later, I would marry the girl that saw something special in my heart. Eight months after the marriage, we learned that my beautiful...
  9. J

    Julie: The Courage to Breathe

    Julie's story is available. 100% of my author royalties are directed to the CF Foundation to help get us all closer to the cure we desperately need. I hope you all enjoy it. When purchased through http://www.lulu.com/spotlight/curecf the donation to the CF Foundation is greater than retail...
  10. J

    Julie: The Courage to Breathe

    All, Over a year ago, I became a member of CysticFibrosis.com. I shared the creation of Julie's Dream Team with you all. A team that does nothing but drink beer and eat pizza/wings. To date, our methods of asking those to "Live life...help others live theirs" has generated over $250,000 for...
  11. J

    Buffalo Wild Wings

    All, Wanted to let you all know that I've been asked to share my Julie's story of battle with CF and her recent double-lung transplant at the National Convention being held by Buffalo Wild Wings in the first week of March. Why? In October of 2011, I asked our Louisville area stores (8 total) to...
  12. J

    Papa John's

    Papa John's is working to correct a system oversight. The CF Foundation will receive any funds owed by orders placed with the CURECF promo code.
  13. J

    Success at University of Kentucky

    On December 19th, my Julie was successfully transplanted at the University of Kentucky. I can't tell you the happiness in my heart for her. I wanted to share a couple of things with you all:<br>1) In our CF community, we MUST change our mindset in so far as when we seek transplant options. For...
  14. J

    Frustration

    Since March, my wife has been complaining about pain associated with a peg tube that was placed during that month.<br>The idea of the peg was to build nutrition. She was never able to tolerate tube feeds. She complained of nausea and pain. High level drugs were given to ease that pain. The CF...
  15. J

    Waiting on Lungs

    Want to talk about dilemmas?  For 40 years, my Julie has battled CF.  For 23 years of her life, we didn't know she had CF.  For the past 17 years, she has not been an average CF patient.  She's had more of her fair share of hospitalizations but she went from 0-60mph FAST on this last one...
  16. J

    Julie's Dream Team

    <span class="Apple-style-span" style="background-color: rgb(250, 250, 250); "><div>Our last agreement with Papa John's, while generating $10,000 for CF research, was unable to get off the ground.  PJ didn't have the technology to do a national agreement.</div><div><br></div><div>Buffalo Wild...
  17. J

    Julie's Dream Team

    <span class="Apple-style-span" style="background-color: rgb(250, 250, 250); "><div>Our last agreement with Papa John's, while generating $10,000 for CF research, was unable to get off the ground.  PJ didn't have the technology to do a national agreement.</div><div><br></div><div>Buffalo Wild...
  18. J

    Julie's Dream Team

    <div>Our last agreement with Papa John's, while generating $10,000 for CF research, was unable to get off the ground.  PJ didn't have the technology to do a national agreement.</div><div><br></div><div>Buffalo Wild Wings, on the other hand, does!  Currently BW3 stores (8 total) in Louisville, KY...
  19. J

    Julie's Dream Team

    WOW! Great Strides took on an entirely different new meaning this weekend. I'm happy to report that Julie's Dream Team raised an astonishing $64,000 for CF research for the walk. I thought that I might share some of the videos from the walk. If you'd like, visit www.youtube.com and search...
  20. J

    Thank You

    Just wanted to take a second to thank everyone that has offered thoughts and prayers for my Julie, here on CF.com.  This is a wonderful site and we're lucky to have it as a means to share and assist each other. We know as CF families that only another CF family can truly "know" what its like...
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