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Hey, I have been more shortness of breath and have been having lots of chest pain and chest rashs on my chest. Needing to use my oxygen all day and night. Having to use more cans of tube-feeding food plus eatting more doing the day. Body pain in my jonts and all over. Head aches often, blueish...

I got my GJ-tube about 4 weeks ago and right now it is in a allot of pain. I have no clue why.. It hurts the most right under the hole where it goes in under the bumper bad. The hole is a bit red and has been letting out infection and I don't kown way?! It is soooo sore I can't move my tummy...

Today my fasting blood suger was 305! and I am very hungry. what should I do about this? I don't want to go to ER.

I took a fasting suger today and it was 135 is this a bit high? I know it's not way high like a normal diabatic. But with CF should I be a little worred? I been having sweats and peeing allot also. I do have a mild fever to. So what is a normal blood suger for people with CF?<img...

Hey everyone! I am getting a port placement in my chest on Friday at 10:00 at are hospital. I getting it becuase I get allot of blood taken and I need IV's often. So does anyone have a port and what are they like? I am not being put out all the way becuase last time I was put out all the way I...

I get sinus pain when I do a work out.. and sometimes as I do my vest? does anyone get this also and what do you do for it I do have allot of sinus issues with my CF.

Does anyone also have F508 & M470V had gene testing done and found out that these are my CF genes.

I have a very hard time coughing up any mucus even for a test. does any eles have this issues becuase If CF makes mucus so thick then it would seem to me that coughing it up would be hard to do if at all... I get CF mucus in other parts of my body like with my period and in my stools and...

as you all know I have CF and I feel like I have my PMS all the time. I am always mad sad upset and feel ill all the time. This past week I have had more PMS and have been getting fevers and night sweats and severe mood swings and I hate it!!! So my ? is do any of you other women with CF tend...

Hey I soon am going to be a part of the Mayo clinic CF center. I wanted to know if any of you guys use or have been to it in MN and what is was like? I have been told it real nice.

All moms that care for CF children are angels and the children who have CF are angels too! Moms of kids with CF work so hard to make there child feel better and try to keep them pain free.. Lord knows best CF does not and will not get me I will always be an angel and so will all the other...

what kind of neb cups do you all use for your treatments? and where do your buy then becuase I am having issues getting more then one neb cup with out having to pay for them..

Hi, I have CF and I am 19 years old. I always had severe digestive issues and now use a feeding tube due to it. I also now take a ton of enzymes and digestive pills. I have some lungs issues also but doctors say my CT of my lungs is normal?! Do people with CF sometimes have a normal CT scan...

Hey everyone! I was in the hospital for a tune-up and lung infection and blowel plug. I got a g-tube put in also. Had good docs. My GJ tube is doing well. But the J tube part is pluged. I have a doc appt for the tube in a week. I was put on the Z-pack med everyday. it has helped allot. I go...

Every night I get up becuase my bed is all sweatie from I think fevers that I get as I sleep or night sweats. Do any of you guys also get night sweats with your CF?

I got CF and I get deep bone pain somtimes and I lay in bad and cry. It seems to happen when I have a infection or somthing. Just what to know if anyone eles with CF has this this..

Hey, Well I have cystic fibrosis and I am soon to be treated at the Mayo Clinic CF center and here is my list of meds I take. I wanted to know if my list of CF meds is normal and if allot of others with CF also use this much meds. 1. Atrovent 2 puffs 2x day 2. Pulmocourt 2 puffs 2x day 3...

My name is Anika. I have cystic fibrosis and I am 19. Over the last few years I have been having severe digestive issues due to my CF lungs getting worse and my digestive issues getting worse. I was unable to eat sold foods becuase my all my digestive issues and worse lung diease. Also I did...

hey there everyone.. I found out that my cystic fibrosis genes are df508's is there anyone eles with them on here?? Anika 19/wCF DF508's CFRD B-C

Ok I have cystic fibrosis and I just got my gene reports in the mail and I need some help understanding them. I have had different gene tests at different labs. One was here in MN where I live. and the other was done CA. The 30 gene pull I had done here in MN said that I have an F508 cystic...