Hey everyone..
I have to ask something. I was told and shown how to put in an NG-tube by the nurse and now I put in my NG-tube at home on my own. Do any of you people that use NG's put them on your own at home once you have been told how to do it??
Anika 19/wCF two F508's
Hey,
My name is Anika the doctors said I had cystic fibrosis and now they say they are not sure!!! I am soooo mad about all this.. I have no clue what to do anymore! I take 15 enzymes with everything I eat.. But I am having all I can do to even eat. My doctor WILL NOT EVEN LET ME DO NG-FEEDINGS...
What are G-tubes like? How are they put in? Are they better then NG-tubes?
I am having huge issues eatting and taking my meds. We are talking about getting a G-tube on me.
Anika 19/w CF on oxygen
Hey everyone,
I just wanted to let all my CF friends know that I was in the hospital for two days for bowel issues. I had an NG-tube put in and I was given meds to help my bowels thru it. This was hard for me. I cryed.
I also was gaven two gallons of enama. So my tummy feels much better. I was...
I use Mucomist and it always get all over everything when I use it! Where can you buy a mist tent to cover the place where you do the Mucomist?
Thats all..
19w CF DF508's
Hey
I have CF and I am seeing more and more people with CF have dark body hair on there arms and stuff.
Does anyone one know anything about this?
I have a friend that died from CF and before she died her arm hair got very dark and thick? It seems that people with CF have more hair on them then...
Hi I am Anika I am now 19 and I have CF. It was my 19th on the 11th of Jan.
Just wanted to tell everyone that.
That's all!
19/w CF DF508/ FEV1 45% FEV 65%/
i have been on prensone for about 4 weeks. and all i do is eat. i get sooo hungury! all the time that i feel like i am going to die if i don't eat. does anyone have the some issue? i have out grown most of my pants due to pms and prensone. plus I am sooo swollen too. I feel so fat! and I hate...
My mom and I found out yesterday that one of our familys babys died of a lung infection he was only 15 mouths old! He had CF and is in my moms family. He was a very sick little boy. This was back in 1962 or so.
I have CF and I am 18. I keep getting lung infections. I had a spit test and I have a bug called cocci and I was told that this is a tape of Pseudomonas A. I get sharp chest pain and shortness of breath allot so right now I am on Prensone. It has been helping somewhat but I still am getting...
I am 18 I have Cystic Fibrosis and I also have Pernicious Anemia. I also have issues getting by blood to clot so I have to take allot of Vimn-K. I wanted to know if any of you other CFers have this same issue.
My e-mail is kkkashley@comcast.com
Thank you...
~Hello~ Has anyone done NG-tubefeeding? If so was it ok? Did it work? did it help you grow taller.
kkkashley@comcast.com
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18/w cf
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