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    Excersize Regimine???

    I am just curious, what is everyones excersize regimine (I know I can't spell) What exactly do you do for excersize? I ask because I feel like I can't excersize very well or much at all. Every time I try to excersize my lungs hurt so much and I can't really do anything. I try to walk a mile...
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    whats the real tx story?

    I have trying to find out as much information about transplants as humanly possible and I have a question... though it may sound harsh. I feel like all I am reading about are these happy stories of people who get transplants, like you just get a new set of lungs and everything is great. I...
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    How Do I Make This Decission?

    I went to the doctor again yesterday and he said we have to start talking about lung transplants now. He gave me a whole bunch of literature and told me to think about it and get back to him in a month. I have absolutely no idea how to even begin to think about getting a transplant. Everytime...
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    How Do I Make This Decission?

    I went to the doctor again yesterday and he said we have to start talking about lung transplants now. He gave me a whole bunch of literature and told me to think about it and get back to him in a month. I have absolutely no idea how to even begin to think about getting a transplant. Everytime...
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    Strange Symptoms???

    <img src="i/expressions/face-icon-small-frown.gif" border="0"> I was wondering ifd anyone might be able to help since my doctor doesn't seem to know whats going on, and even more doesn't really seem to care. I have been having these wierd symptoms for a while that won't go away no matter what...
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    Do Air Filters Work?

    I have been looking into investing in an air filter. I have been told the Bionair HEPA tower is the best. Do you know if they really work? Does anyone use them and if so have you noticed any improvement? Do you think it's worth the investment?
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    What Is Preventative Care?

    I have heard many of you talk about preventative care and speak of the importance of finding a doctor who focuses on teaching and treating preventative care but I have to be hontest I don't really know what that means or what that would look like or be? I'm trying really hard to figure all of...
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    Problems Eating

    As I have gotten older I have grown more and more resentful of eating and it's entire process. I always find that I can eat small amounts and it never seems to be enough even with this damn feeding tube. I haven't been able to gain a pound. One of my biggest problem after I eat I always feel...
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    Insulin Absorbtion with CFRD

    Like so many others who I have read about on this site along with having cystic fibrosis I also have cystic fibrosis related diabetes. I was diagnosed when I was 13 and I just turned 22 last week. I have never been very good with keeping by blood sugars down, unfortunately I have a propensity...
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    gaining weight with a g-tube, question?

    So if I am going to be getting this stupid g-tube at the end of May (still on the fence about it though) I want to ask, generally how much weight people have gained having them in? And how long it took? I will be the first to say I am not a patient person and I really want to see some quick...
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    Cf and stem cell research

    So I have to do a persuassive speech for my college speech class in about two weeks and I want to do it on stem cell research particularly in cf patients, does anyone have any good websites/information where I can start to begin my research? Any info/help will do. Thanks
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    Anyone done a great strides cf walk?

    <img src="i/expressions/face-icon-small-cool.gif" border="0"> So my best friend told me that on May 18 there is going to be a great strides CF walk/run at Howard Park in Santa Rosa, California (where I live) on May 18 and I really really really really want to go. I am not particularly that...
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    G-tube help/advice/support

    my name is annie and I am 21 years old living with cystic fibrosis, cf related diabetes and cf related arthritus and I really really really need some advice/support/help. I went to the doctor last week and they told me that if I don't get a g-tube placed chances are I wouldn't live very much...
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    Alternative Medications and Support

    My name is Annie I am a 21 year old college student and have lived with cystic fibrosis all of my life. I was also diagnosed with diabetes (caused by the cystic fibrosis) when I was 13. Growing up I was a fairly healthy child (comparatively speaking) however over the past 4 years my health has...
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