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  1. K

    Exercising ideas?

    I've been doing pulm rehab for about a month, trying to get my lung function up and everything feels soooo slow. They are really cautious about moving up exercise. So they've been gradually nudging me up but again it feels so incredibly slow. Perhaps I'm being impatient... I was wondering if...
  2. K

    J-tube leaking

    I had a J-tube placed in February and despite the ridiculous ordeal that turned into, it's been awesome in helping me gain weight. I no longer look disgustingly emaciated. Woo! Anyway, the tube site itself is constantly leaking. It's not a lot, but enough where I have to constantly wear a...
  3. K

    Resistant Strains

    I was just curious if anyone else had this problem/had any suggestions besides increasing treaments. Luckily I'm not culturing this right now, but my achromabactor (sp??) is literally resistant to everything. Not even an "I" on that list of medicines the docs use. They look at it and go, hmmm...
  4. K

    Tips and Tricks

    Hey! I thought it would be interesting and beneficial to post up some different tips/tricks everyone uses related more to organizing all things CF related. For example: I have one of those giant rubbermaid containers with a bunch of drawers in different sizes to put most of my medical supplies...
  5. K

    Exercise and Eating??

    I was wondering what everyone does for exercise? I am having trouble finding something that works well for me without being too draining. I tried light jogging and swimming, double fail. Cardio like that is too intense for my lungs. After 10 minutes, if that, I'm coughing up blood because...
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