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  1. A

    Atypical cf?

    I had a very unusual call and got to speak with the CF director at Boston Children's yesterday. We have a child with crazy sinuses and is a carrier. I had a number of questions about nasal potential difference testing as he had a "normal" sweat test of 10 and 11. The director told me that you...
  2. A

    Atypical cf?

    I had a very unusual call and got to speak with the CF director at Boston Children's yesterday. We have a child with crazy sinuses and is a carrier. I had a number of questions about nasal potential difference testing as he had a "normal" sweat test of 10 and 11. The director told me that you...
  3. A

    Atypical cf?

    I had a very unusual call and got to speak with the CF director at Boston Children's yesterday. We have a child with crazy sinuses and is a carrier. I had a number of questions about nasal potential difference testing as he had a "normal" sweat test of 10 and 11. The director told me that you...
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    Nasal Potential Difference Atlanta-Cincinnati Anyone?

    We haven't had this done yet, but we are looking into it at Children's Hospital of Philadelphia where they are doing a study. <a target=_blank class=ftalternatingbarlinklarge href="http://clinicaltrials.gov/ct2/show/NCT00589745 ">http://clinicaltrials.gov/ct2/show/NCT00589745 </a> We've been...
  5. A

    Nasal Potential Difference Atlanta-Cincinnati Anyone?

    We haven't had this done yet, but we are looking into it at Children's Hospital of Philadelphia where they are doing a study. <a target=_blank class=ftalternatingbarlinklarge href="http://clinicaltrials.gov/ct2/show/NCT00589745 ">http://clinicaltrials.gov/ct2/show/NCT00589745 </a> We've been...
  6. A

    Nasal Potential Difference Atlanta-Cincinnati Anyone?

    We haven't had this done yet, but we are looking into it at Children's Hospital of Philadelphia where they are doing a study. <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://clinicaltrials.gov/ct2/show/NCT00589745 ">http://clinicaltrials.gov/ct2/show/NCT00589745...
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    nasal differential testing questions

    I was wondering if anyone out there has done the nasal potential differential testing. I know its not offered in too many facilities and we're trying to figure out if its something we need to pursue. Our 5 yo son has chronic sinus disease. He is a CF carrier and had a normal sweat test. His...
  8. A

    nasal differential testing questions

    I was wondering if anyone out there has done the nasal potential differential testing. I know its not offered in too many facilities and we're trying to figure out if its something we need to pursue. Our 5 yo son has chronic sinus disease. He is a CF carrier and had a normal sweat test. His...
  9. A

    nasal differential testing questions

    I was wondering if anyone out there has done the nasal potential differential testing. I know its not offered in too many facilities and we're trying to figure out if its something we need to pursue. <br /> <br />Our 5 yo son has chronic sinus disease. He is a CF carrier and had a normal sweat...
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    CF centers in Boston

    Thanks and I'll keep all this in mind as we go forward. Right now I really like our ENT and I wouldn't be ready to change from him. Life makes many changes though and I will keep this in case I need it. I appreciate the note about communication. We have been trying to help one of our other...
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    CF centers in Boston

    Thanks and I'll keep all this in mind as we go forward. Right now I really like our ENT and I wouldn't be ready to change from him. Life makes many changes though and I will keep this in case I need it. I appreciate the note about communication. We have been trying to help one of our other...
  12. A

    CF centers in Boston

    Thanks and I'll keep all this in mind as we go forward. Right now I really like our ENT and I wouldn't be ready to change from him. Life makes many changes though and I will keep this in case I need it. I appreciate the note about communication. We have been trying to help one of our other...
  13. A

    CF centers in Boston

    Thanks and I'll keep all this in mind as we go forward. Right now I really like our ENT and I wouldn't be ready to change from him. Life makes many changes though and I will keep this in case I need it. I appreciate the note about communication. We have been trying to help one of our other...
  14. A

    CF centers in Boston

    Thanks and I'll keep all this in mind as we go forward. Right now I really like our ENT and I wouldn't be ready to change from him. Life makes many changes though and I will keep this in case I need it. I appreciate the note about communication. We have been trying to help one of our other...
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    Welcome Ambry Genetics

    Steve, I have one additional question. My husband is third generation from Europe. Grandfather from Hungary and grandmother from Italy, father mixed Irish descent. Is my understanding that Ambry's process will detect both European and American mutations correct? I was reading a European...
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    Welcome Ambry Genetics

    We found out that our son has one mutation detected through Ambry called C2752-26a > g. Can you shed any more light on this mutation. He has symptoms and we have an appointment with a CF center but in the mean time we're trying to educate ourselves as much as we can. Thanks.
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    CF centers in Boston

    Thanks so much for your input. Our ENT is at MEEI. I did really like the nurse coordinator at Children's. One day at a time with prayer and we'll get it figured out. I do appreciate your help.
  18. A

    CF centers in Boston

    Thanks so much for your input. Our ENT is at MEEI. I did really like the nurse coordinator at Children's. One day at a time with prayer and we'll get it figured out. I do appreciate your help.
  19. A

    CF centers in Boston

    Thanks so much for your input. Our ENT is at MEEI. I did really like the nurse coordinator at Children's. One day at a time with prayer and we'll get it figured out. I do appreciate your help.
  20. A

    CF centers in Boston

    Thanks so much for your input. Our ENT is at MEEI. I did really like the nurse coordinator at Children's. One day at a time with prayer and we'll get it figured out. I do appreciate your help.
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