Search results

  1. M

    I need information

    THANK YOU GUYS! MICHELLE
  2. M

    I need information

    LOGAN'S SWEAT TEST CAME BACK NORMAL! THANK YOU ALL OF YOU WHO WERE SO NICE TO WRITE ME BITS OF ENCOURAGMENT THROUGHOUT THIS JOURNEY. ALL OF YOU AND YOUR FAMILIES WILL CONTINUE IN MY PRAYERS. YOU ARE ALL VERY SPECIAL PEOPLE! MICHELLE
  3. M

    smell of smoke

    One quick note not related to CF but still could effect your daughter--I lost my father last year to lung cancer which spread to his bones. He was a long time smoker who "never had a good reason to quit". He was diagnosed in August 2003 and died January 2, 2004 (not even 5 months after the...
  4. M

    I need information

    Logan had his sweat test this morning so now we're just waiting for the results. The lab said they would have the results today between four and five but my hearing depends on my doctor. I am assuming I will know tomorrow. It will be nice to finally know either way. I am so happy I went home...
  5. M

    I need information

    THANKS EVERYONE.
  6. M

    I need information

    Yes, he went today for an asthma appointment and the Sweat Test was set up at Children's for Monday at 8:40 in the morning. His PCM is Hoime but he had been seeing a lot of Camfort. I'm not sure if I spelled either of their names correctly but I like them both. Vaglia was our PCM before he...
  7. M

    I need information

    LOGAN HAS BEEN SCHEDULED FOR HIS SWEAT TEST. HE GOES ON MONDAY MORNING (APRIL 18) AT 8:40. THEY SAID TO LOAD HIM UP ON FLUIDS THE DAY BEFORE AND THE MORNING BEFORE THE TEST AND TO BRING EXTRA CLOTHES AND BLANKETS TO MAKE HIM SWEAT. IS THIS THE NORM? HOW LONG DOES IT USUALLY TAKE TO...
  8. M

    I need information

    WHOEVER READS THIS..PLEASE KEEP THE INFORMATION COMING--EVERY LITTLE BIT HELPS. IF YOU'RE THE MOM FROM OFFUTT--I'M LOOKING FORWARD TO HEARING FROM YOU AGAIN. THANKS GUYS!
  9. M

    I need information

    Julie-your information was very helpful. My husband is AD/AF and is currently a staff sergeant. We have two other children besides Logan (they do not have CF)so money is aleady tight around here. I am a stay at home mom although I was planning on going back to work in the fall or to school...
  10. M

    I need information

    Thank you so much, Julie.
  11. M

    Maria?

    Sorry, no relation to the Mott family. I am actually Michelle Ott. :-)
  12. M

    I need information

    Thank you to all of you--any piece of information is very appreciated at this time no matter if it pertains to a young person or an older person. If Logan does have CF, we'll need to know what his future holds as well. I know no one knows what the future holds but I guess I mean what life will...
  13. M

    Maria?

    THANK YOU! We live on Offutt AFB near Omaha so thought maybe you were talking about the Childrens Hospital here. I have never been in a forum type thing online before so I didn't know if I had "broken the rules" by asking a question or what. I felt really bad for possibly hurting someone's...
  14. M

    I need information

    Thank you so much for your bits of insite. It really means a lot to me and helps me a bunch. Please keep coming.
  15. M

    I need information

    [No message]
  16. M

    I need information

    PLEASE ANYONE WHO READS THIS THREAD--PLEASE LEAVE ME SOME SORT OF INFORMATION TO HELP ME AS WE BEGIN THIS JOURNEY. I ASKED FOR HELP ON SOMEONE ELSES THREAD AND HAVE LEARNED THAT IS NOT THE RIGHT THING TO DO--THEY HAVE REAL PROBLEMS AND IT WAS RUDE OF ME TO ASK THEM. I GUESS I'LL JUST DEPEND ON...
  17. M

    Maria?

    Didn't mean step on any toes. I guess this this isn't the right place to be searching for help--thought I'd get some help here but I guess not. I thought someone who is going through it could help but I can see I was way wrong. Oh, and I did start my own thread before writing in this one. I...
  18. M

    Maria?

    What children's clinic are you talking about? My 16 month old son is suspected of having CF so I've been reading all the postings and web pages I can. Trying to learn as much as I can just in case. I'm really scared.
  19. M

    I need information

    Kelly & Carey--you were both very helpful to me. Right now I am reading all this stuff and getting really scared. Can you tell me an example of what an average day is like with a child who has CF. I'm sure everyone is different and each household has thier own routine, but I'm trying to get an...
  20. M

    I need information

    Liza--we are also based here at Offutt AFB. Logan has not been seen by his assigned PCM in the peds clinic yet but will see her Tuesday for an athma appointment and than the next day for a well baby check. The awesome doctor he had been seeing the majority of his 16 months of life is the one...
Top