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  1. M

    Probably not Cf? what do you think?

    Sorry to hear you are going through this. (((hugs))). My son was a diagnostic dilemma as well, but ALL of his tests came back abnormal but the amazing doctors (i am saying this sarcastically) that we were dealing with could not add 1+1!! He also had a mutation screen that showed nothing. So they...
  2. M

    Probably not Cf? what do you think?

    Sorry to hear you are going through this. (((hugs))). My son was a diagnostic dilemma as well, but ALL of his tests came back abnormal but the amazing doctors (i am saying this sarcastically) that we were dealing with could not add 1+1!! He also had a mutation screen that showed nothing. So they...
  3. M

    Probably not Cf? what do you think?

    <p>Sorry to hear you are going through this. (((hugs))). My son was a diagnostic dilemma as well, but ALL of his tests came back abnormal but the amazing doctors (i am saying this sarcastically) that we were dealing with could not add 1+1!! He also had a mutation screen that showed nothing. So...
  4. M

    Does this happen to anyone else?

    Heather, ((((HUGS)))) thanks!! You always have such great advice!! I do think I am pretty traumatized and I always walk out of the CF center totally fatootsed. I always act like such a wierdo when I am there too!! HAHAHA! Last time I was so nervous I tripped and made a fool out of myself <img...
  5. M

    Does this happen to anyone else?

    Heather, ((((HUGS)))) thanks!! You always have such great advice!! I do think I am pretty traumatized and I always walk out of the CF center totally fatootsed. I always act like such a wierdo when I am there too!! HAHAHA! Last time I was so nervous I tripped and made a fool out of myself <img...
  6. M

    Does this happen to anyone else?

    Heather, <br />((((HUGS)))) thanks!! You always have such great advice!! I do think I am pretty traumatized and I always walk out of the CF center totally fatootsed. I always act like such a wierdo when I am there too!! HAHAHA! Last time I was so nervous I tripped and made a fool out of myself...
  7. M

    Does this happen to anyone else?

    So Marty has another appointment on Monday at the CF center. I find myself getting so nervous for every stinkin appointment. Everytime we go there is always something going on. It is soooo annoying. The night before the appointment I can't even sleep!! I feel pretty comfortable there and Marty...
  8. M

    Does this happen to anyone else?

    So Marty has another appointment on Monday at the CF center. I find myself getting so nervous for every stinkin appointment. Everytime we go there is always something going on. It is soooo annoying. The night before the appointment I can't even sleep!! I feel pretty comfortable there and Marty...
  9. M

    Does this happen to anyone else?

    So Marty has another appointment on Monday at the CF center. I find myself getting so nervous for every stinkin appointment. Everytime we go there is always something going on. It is soooo annoying. The night before the appointment I can't even sleep!! I feel pretty comfortable there and Marty...
  10. M

    any vest systems for sale?

    Oh and I just want to add, I wrote letters to the insurance company. I had a representative at Hill Rom help me with the whole thing. I sent the letters directly to her and she handled the whole appeal process for me. Eventually, the insurance was sick of hearing from me and paid!! After the...
  11. M

    any vest systems for sale?

    Oh and I just want to add, I wrote letters to the insurance company. I had a representative at Hill Rom help me with the whole thing. I sent the letters directly to her and she handled the whole appeal process for me. Eventually, the insurance was sick of hearing from me and paid!! After the...
  12. M

    any vest systems for sale?

    Oh and I just want to add, I wrote letters to the insurance company. I had a representative at Hill Rom help me with the whole thing. I sent the letters directly to her and she handled the whole appeal process for me. Eventually, the insurance was sick of hearing from me and paid!! After the...
  13. M

    any vest systems for sale?

    Oh no I am so sorry you are having trouble getting a vest!! Have you spoken to Hill Rom? They have a really nice patient assistance program and they gave us the machine until they worked out the insurance stuff. I would give them a call because they are fantastic to work with. Marty's doc just...
  14. M

    any vest systems for sale?

    Oh no I am so sorry you are having trouble getting a vest!! Have you spoken to Hill Rom? They have a really nice patient assistance program and they gave us the machine until they worked out the insurance stuff. I would give them a call because they are fantastic to work with. Marty's doc just...
  15. M

    any vest systems for sale?

    Oh no I am so sorry you are having trouble getting a vest!! Have you spoken to Hill Rom? They have a really nice patient assistance program and they gave us the machine until they worked out the insurance stuff. I would give them a call because they are fantastic to work with. Marty's doc just...
  16. M

    Do you enjoy hospital stays?

    I have to say this made me chuckle....just a bit <img src="i/expressions/face-icon-small-smile.gif" border="0"> I do not have CF but my son does and I hate the hospital! So much, in fact, I have nightmares about it....ugh! I know this is because I can't stand to see my child suffer!! However, I...
  17. M

    Do you enjoy hospital stays?

    I have to say this made me chuckle....just a bit <img src="i/expressions/face-icon-small-smile.gif" border="0"> I do not have CF but my son does and I hate the hospital! So much, in fact, I have nightmares about it....ugh! I know this is because I can't stand to see my child suffer!! However, I...
  18. M

    Do you enjoy hospital stays?

    I have to say this made me chuckle....just a bit <img src="i/expressions/face-icon-small-smile.gif" border="0"> I do not have CF but my son does and I hate the hospital! So much, in fact, I have nightmares about it....ugh! I know this is because I can't stand to see my child suffer!! However, I...
  19. M

    Be careful fundraising

    UGH!!! This is so sickening. Makes me want to puke.
  20. M

    Be careful fundraising

    UGH!!! This is so sickening. Makes me want to puke.
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