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  1. A

    Potty Training with a G-tube

    <br>Just wanted to reply because I am also potty training our 2 yr. old twin boys one with CF (no g-tube) one without. I use the off name brand of pull ups from Wal-mart Whitecloud  52 for $16.97. I tried the Huggies brand but they have elastic sides and my boys figured out in 2.2 seconds that...
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    Potty Training with a G-tube

    <br>Just wanted to reply because I am also potty training our 2 yr. old twin boysone with CF (no g-tube) one without. I use the off name brand of pull ups from Wal-mart Whitecloud 52 for $16.97. I tried the Huggies brand but they have elastic sides and my boys figured out in 2.2 seconds that...
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    Potty Training with a G-tube

    <br>Just wanted to reply because I am also potty training our 2 yr. old twin boysone with CF (no g-tube) one without. I use the off name brand of pull ups from Wal-mart Whitecloud 52 for $16.97. I tried the Huggies brand but they have elastic sides and my boys figured out in 2.2 seconds that...
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    Hypertonic Saline in 2 year old

    Hi my son Braden just turned two in April and has been on Hts since he was 1 and he has done great with it. He never has had any issues with it or any of his meds. He has started to try to us the mouth piece instead of the face mask but I think it fun right now so who knows how long it will...
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    Hypertonic Saline in 2 year old

    Hi my son Braden just turned two in April and has been on Hts since he was 1 and he has done great with it. He never has had any issues with it or any of his meds. He has started to try to us the mouth piece instead of the face mask but I think it fun right now so who knows how long it will...
  6. A

    Hypertonic Saline in 2 year old

    Hi my son Braden just turned two in April and has been on Hts since he was 1 and he has done great with it. He never has had any issues with it or any of his meds. He has started to try to us the mouth piece instead of the face mask but I think it fun right now so who knows how long it will...
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    Perceptions of CF

    I agree that it's not out there enough or at all. I don't think I've ever seen a commercial about CF. I tried for a month and a half to get the local news stations ( there are two) to cover the walk-a-thon and never got a respond from them. You can email them story suggestions and they are...
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    Perceptions of CF

    I agree that it's not out there enough or at all. I don't think I've ever seen a commercial about CF. I tried for a month and a half to get the local news stations ( there are two) to cover the walk-a-thon and never got a respond from them. You can email them story suggestions and they are...
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    Perceptions of CF

    <BR>I agree that it's not out there enough or at all. I don't think I've ever seen a commercial about CF. I tried for a month and a half to get the local news stations ( there are two) to cover the walk-a-thon and never got a respond from them. You can email them story suggestions and they are...
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    Cayston for younger children and toddlers

    Thanks for replying. He doesn't have any hearing or liver problems by what his Dr said it is long term side effects of tobi and since he will be on it longterm it was her concern. He's only two and does the mask so using the mouth piece would be something new. Thanks for bringing it up. I've...
  11. A

    Cayston for younger children and toddlers

    Thanks for replying. He doesn't have any hearing or liver problems by what his Dr said it is long term side effects of tobi and since he will be on it longterm it was her concern. He's only two and does the mask so using the mouth piece would be something new. Thanks for bringing it up. I've...
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    Cayston for younger children and toddlers

    <p>Thanks for replying. He doesn't have any hearing or liver problems by what his Dr said it is long term side effects of tobi and since he will be on it longterm it was her concern. He's only two and does the mask so using the mouth piece would be something new. Thanks for bringing it up. I've...
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    Cayston for younger children and toddlers

    My 2yr son Braden cultured psuedomonas for the third time since birth this past month. We then did at home tobi and cipro only to reculture it again. We were just released from the hospital today after doing a week on antibio. His Dr felt that because he was doing so good that keeping him in the...
  14. A

    Cayston for younger children and toddlers

    My 2yr son Braden cultured psuedomonas for the third time since birth this past month. We then did at home tobi and cipro only to reculture it again. We were just released from the hospital today after doing a week on antibio. His Dr felt that because he was doing so good that keeping him in the...
  15. A

    Cayston for younger children and toddlers

    <p>My 2yr son Braden cultured psuedomonas for the third time since birth this past month. We then did at home tobi and cipro only to reculture it again. We were just released from the hospital today after doing a week on antibio. His Dr felt that because he was doing so good that keeping him in...
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    3 month old that weighs 7lbs 8oz

    Hi- my sons was dx at 42 days old and his poop was alot like hers after taking the creon the poop firmed up but has always been stringy, Sorry, I know that sounds gross but it is what  it is. You will definetly see a difference if it is working. He would and still does spit up the Aqueks and he...
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    3 month old that weighs 7lbs 8oz

    Hi- my sons was dx at 42 days old and his poopwas alot like hers after taking the creon the poop firmed up but has always been stringy, Sorry, I know that sounds gross but it is what it is. You will definetly see a difference if it is working. He would and still does spit up the Aqueks and he is...
  18. A

    3 month old that weighs 7lbs 8oz

    <p>Hi- my sons was dx at 42 days old and his poopwas alot like hers after taking the creon the poop firmed up but has always been stringy, Sorry, I know that sounds gross but it is what it is. You will definetly see a difference if it is working. He would and still does spit up the Aqueks and he...
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    Aren't we all fighting the same fight?!?!?!

    Maybe you could get a couple of friends and family to wear your tee-shirts and hand out your flyers. They could walk through the crowd giving them out and getting your message out there to those who need it. I don't see what harm that would do if they won't let you set up a table.
  20. A

    Aren't we all fighting the same fight?!?!?!

    Maybe you could get a couple of friends and family to wear your tee-shirts and hand out your flyers. They could walk through the crowd giving them out and getting your message out there to those who need it. I don't see what harm that would do if they won't let you set up a table.
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