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  1. C

    Pulmozyme "funny taste"

    Pulmozyme "funny taste Well, thanks everyone for your thoughts, I have asked my son questions based on some of the replies, but nothing seems to fit. I guess its one of those "hmmm" things. But in the mean time, I will just have to keep a check on it until we can figure it out. Never a dull...
  2. C

    Pulmozyme "funny taste"

    Pulmozyme "funny taste Well, thanks everyone for your thoughts, I have asked my son questions based on some of the replies, but nothing seems to fit. I guess its one of those "hmmm" things. But in the mean time, I will just have to keep a check on it until we can figure it out. Never a dull...
  3. C

    Pulmozyme "funny taste"

    Pulmozyme "funny taste Well, thanks everyone for your thoughts, I have asked my son questions based on some of the replies, but nothing seems to fit. I guess its one of those "hmmm" things. But in the mean time, I will just have to keep a check on it until we can figure it out. Never a dull...
  4. C

    Pulmozyme "funny taste"

    Pulmozyme "funny taste Well, thanks everyone for your thoughts, I have asked my son questions based on some of the replies, but nothing seems to fit. I guess its one of those "hmmm" things. But in the mean time, I will just have to keep a check on it until we can figure it out. Never a dull...
  5. C

    Pulmozyme "funny taste"

    Pulmozyme "funny taste Well, thanks everyone for your thoughts, I have asked my son questions based on some of the replies, but nothing seems to fit. I guess its one of those "hmmm" things. But in the mean time, I will just have to keep a check on it until we can figure it out. Never a dull...
  6. C

    Pulmozyme "funny taste"

    Pulmozyme "funny taste Well, thanks everyone for your thoughts, I have asked my son questions based on some of the replies, but nothing seems to fit. I guess its one of those "hmmm" things. But in the mean time, I will just have to keep a check on it until we can figure it out. Never a dull...
  7. C

    Pulmozyme "funny taste"

    My son who has been using pulmozyme for approx 4 yrs now just started having a funny taste in his mouth as he is finishing his pulmozyme. I looked through the package insert with the med and did not find anything like that. I have a call into the doc, but have not heard anything yet. I was...
  8. C

    Pulmozyme "funny taste"

    My son who has been using pulmozyme for approx 4 yrs now just started having a funny taste in his mouth as he is finishing his pulmozyme. I looked through the package insert with the med and did not find anything like that. I have a call into the doc, but have not heard anything yet. I was...
  9. C

    Pulmozyme "funny taste"

    My son who has been using pulmozyme for approx 4 yrs now just started having a funny taste in his mouth as he is finishing his pulmozyme. I looked through the package insert with the med and did not find anything like that. I have a call into the doc, but have not heard anything yet. I was...
  10. C

    The Vest

    Hi there, my son has been using his vest since april/03. There is almost 900 hrs on it. We've gone through several tubes and a couple vests. Thats about it. It seems to be holding up.<img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. C

    The Vest

    Hi there, my son has been using his vest since april/03. There is almost 900 hrs on it. We've gone through several tubes and a couple vests. Thats about it. It seems to be holding up.<img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. C

    The Vest

    Hi there, my son has been using his vest since april/03. There is almost 900 hrs on it. We've gone through several tubes and a couple vests. Thats about it. It seems to be holding up.<img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. C

    Can your gene mutation define your symptoms or severity of symptoms?

    Ditto for me on the CF related arthritis ? My son also complains about his legs hurting and sometimes feet. Any thoughts ?
  14. C

    I am new here

    Thank you and everyone for your insights ! I have already learned some things from here that I did not know about ! I greatly appreciate it ! <img src="i/expressions/face-icon-small-happy.gif" border="0">
  15. C

    I am new here

    Thank you, ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> My son is 10. Well, I shouldn't rack my brain anymore about who in the family could have had it. One of my initial thoughts was, what are the odds of me & my husband being carriers. Too bad that isn't a test when you get...
  16. C

    I am new here

    I am new to this forum and some what new to CF since my son has been diagnosed 2 years ago. He was sent through all the testing that goes along with it and had a genetic test was done. We were informed he doesn't have the I think "80 common genes" for CF. He has the respiratory problems but not...
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