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  1. M

    Collections

    Any suggestions on how to get an accurate Fecal Elastase from an 8 month old? Also, is it okay for her to be on Lansoprazole(Prevacid), Baclofen & Amox-Clav? I forgot to ask & the girls were not very helpful at our local Labcorp. Thanks in advance
  2. M

    Collections

    Any suggestions on how to get an accurate Fecal Elastase from an 8 month old? Also, is it okay for her to be on Lansoprazole(Prevacid), Baclofen & Amox-Clav? I forgot to ask & the girls were not very helpful at our local Labcorp. Thanks in advance
  3. M

    Collections

    Any suggestions on how to get an accurate Fecal Elastase from an 8 month old? <br /> <br />Also, is it okay for her to be on Lansoprazole(Prevacid), Baclofen & Amox-Clav? I forgot to ask & the girls were not very helpful at our local Labcorp. <br /> <br />Thanks in advance
  4. M

    Results are In

    Lauren, She cultured Moraxella Cattarhalis & H. Flu, she's only had one bronc & that's what it showed. She had one sweat test that was 44 and the next, a month later that was 10. There were no mutations found in the CFTR gene. Ambry did the Amplified & Deletions/Duplications panel. I think...
  5. M

    Results are In

    Lauren, She cultured Moraxella Cattarhalis & H. Flu, she's only had one bronc & that's what it showed. She had one sweat test that was 44 and the next, a month later that was 10. There were no mutations found in the CFTR gene. Ambry did the Amplified & Deletions/Duplications panel. I think...
  6. M

    Results are In

    Lauren, <br /> <br />She cultured Moraxella Cattarhalis & H. Flu, she's only had one bronc & that's what it showed. She had one sweat test that was 44 and the next, a month later that was 10. There were no mutations found in the CFTR gene. Ambry did the Amplified & Deletions/Duplications panel...
  7. M

    Results are In

    Today we found out our daughter does not have Cystic Fibrosis. Grateful and relieved about the results, we still stand in limbo land. She has several unresolved health issues and has pneumonia for what is the 6th time since her birth (she's only 8 months). Our next step with our sweet girl is...
  8. M

    Results are In

    Today we found out our daughter does not have Cystic Fibrosis. Grateful and relieved about the results, we still stand in limbo land. She has several unresolved health issues and has pneumonia for what is the 6th time since her birth (she's only 8 months). Our next step with our sweet girl is...
  9. M

    Results are In

    Today we found out our daughter does not have Cystic Fibrosis. <br /> <br />Grateful and relieved about the results, we still stand in limbo land. She has several unresolved health issues and has pneumonia for what is the 6th time since her birth (she's only 8 months). <br /> <br />Our next...
  10. M

    No News Good News?

    We sent off my daughters CF Amplified test the last week of November. I called Ambry this morning to double check and see if her lab work had already been processed. They said that they faxed the Pediatricians office December 27. Well, we haven't gotten a phone call from the office yet...should...
  11. M

    No News Good News?

    We sent off my daughters CF Amplified test the last week of November. I called Ambry this morning to double check and see if her lab work had already been processed. They said that they faxed the Pediatricians office December 27. Well, we haven't gotten a phone call from the office yet...should...
  12. M

    No News Good News?

    We sent off my daughters CF Amplified test the last week of November. I called Ambry this morning to double check and see if her lab work had already been processed. <br />They said that they faxed the Pediatricians office December 27. Well, we haven't gotten a phone call from the office...
  13. M

    G-tube

    My daughter has a mic-key button and receives nothing but pump feeds. At 2 months she was dx as FTT-failure to thrive. My husband and I made the difficult decision to have a Nissen Fundoplication for her(surgery to help correct GERD) b/c she was so small they recommended placing a g-tube as...
  14. M

    G-tube

    My daughter has a mic-key button and receives nothing but pump feeds. At 2 months she was dx as FTT-failure to thrive. My husband and I made the difficult decision to have a Nissen Fundoplication for her(surgery to help correct GERD) b/c she was so small they recommended placing a g-tube as...
  15. M

    G-tube

    My daughter has a mic-key button and receives nothing but pump feeds. At 2 months she was dx as FTT-failure to thrive. My husband and I made the difficult decision to have a Nissen Fundoplication for her(surgery to help correct GERD) b/c she was so small they recommended placing a g-tube as...
  16. M

    The Great Christmas Debacle

    I understand all of your frustrations. I love my in-laws and always have after 12 years of being in the family. However, because I was so blunt with letting everyone know they can not be around our daughter if they are sick, they feel as if I'm trying to cause division in the family. I don't...
  17. M

    The Great Christmas Debacle

    I understand all of your frustrations. I love my in-laws and always have after 12 years of being in the family. However, because I was so blunt with letting everyone know they can not be around our daughter if they are sick, they feel as if I'm trying to cause division in the family. I don't...
  18. M

    The Great Christmas Debacle

    I understand all of your frustrations. I love my in-laws and always have after 12 years of being in the family. However, because I was so blunt with letting everyone know they can not be around our daughter if they are sick, they feel as if I'm trying to cause division in the family. I don't...
  19. M

    Hopkins Appointment

    This is encouraging and uplifting. We have battled for 5 months on my daughters symptoms. We go to Hopkins next month. I'm hopeful they too will help us find a diagnosis whether CF or not, just like you guys. Best of luck in finding answers.
  20. M

    Hopkins Appointment

    This is encouraging and uplifting. We have battled for 5 months on my daughters symptoms. We go to Hopkins next month. I'm hopeful they too will help us find a diagnosis whether CF or not, just like you guys. Best of luck in finding answers.
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