Search results

  1. S

    Looking for some cystic fibosis friends

    my daughter would love some CF friends. she is on facebook. her name is Sara Splitstone. Just let her know you have CF. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. S

    Looking for some cystic fibosis friends

    my daughter would love some CF friends. she is on facebook. her name is Sara Splitstone. Just let her know you have CF. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. S

    Looking for some cystic fibosis friends

    my daughter would love some CF friends. she is on facebook. her name is Sara Splitstone. Just let her know you have CF. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. S

    Major disaster in the Northeast, USA

    We live in Connecticut and it was horrible. We finally got out power back after four days. Our daughter ended up getting sick from not being able to do her vests. Now she is on hyper saline and pulmozyme twice a day. Ugghhh... New England weather is not fun!!
  5. S

    Major disaster in the Northeast, USA

    We live in Connecticut and it was horrible. We finally got out power back after four days. Our daughter ended up getting sick from not being able to do her vests. Now she is on hyper saline and pulmozyme twice a day. Ugghhh... New England weather is not fun!!
  6. S

    Major disaster in the Northeast, USA

    We live in Connecticut and it was horrible. We finally got out power back after four days. Our daughter ended up getting sick from not being able to do her vests. <br /> <br />Now she is on hyper saline and pulmozyme twice a day. <br /> <br />Ugghhh... New England weather is not fun!!
  7. S

    R117h 7T, intermediate sweat test result

    I don't usually post on here but wanted to let you know a little about our situation. We found out in March of this year that my 11year old and 6 year old have CF. They have the mutations DF508/R117H. Yes they say they are milder but it depends. My daughter is on the severe side. Severely...
  8. S

    R117h 7T, intermediate sweat test result

    I don't usually post on here but wanted to let you know a little about our situation. We found out in March of this year that my 11year old and 6 year old have CF. They have the mutations DF508/R117H. Yes they say they are milder but it depends. My daughter is on the severe side. Severely...
  9. S

    R117h 7T, intermediate sweat test result

    I don't usually post on here but wanted to let you know a little about our situation. <br /> <br />We found out in March of this year that my 11year old and 6 year old have CF. They have the mutations DF508/R117H. Yes they say they are milder but it depends. <br /> <br />My daughter is on the...
  10. S

    10 year old diagnosed

    My 10 year old had pneumonia for three months. Infectious disease doctor ordered ct scan and when results came admitted us to Yale New Haven Children's Hospital. She has her picc line. We are learning tons of information but I am scared about her future. She is such a trooper. We are on vest...
  11. S

    10 year old diagnosed

    My 10 year old had pneumonia for three months. Infectious disease doctor ordered ct scan and when results came admitted us to Yale New Haven Children's Hospital. She has her picc line. We are learning tons of information but I am scared about her future. She is such a trooper. We are on vest...
  12. S

    10 year old diagnosed

    My 10 year old had pneumonia for three months. Infectious disease doctor ordered ct scan and when results came admitted us to Yale New Haven Children's Hospital. She has her picc line. We are learning tons of information but I am scared about her future. She is such a trooper. We are on vest...
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