My 10 year old had pneumonia for three months. Infectious disease doctor ordered ct scan and when results came admitted us to Yale New Haven Children's Hospital. She has her picc line. We are learning tons of information but I am scared about her future. She is such a trooper. We are on vest treatments every 3 hrs, pulmozyme, albuterol, enzyme, and iv therapy every 8 hrs. Waiting to find out what gene she has.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
10 year old diagnosed
- Thread starter sarasmama
- Start date
My 10 year old had pneumonia for three months. Infectious disease doctor ordered ct scan and when results came admitted us to Yale New Haven Children's Hospital. She has her picc line. We are learning tons of information but I am scared about her future. She is such a trooper. We are on vest treatments every 3 hrs, pulmozyme, albuterol, enzyme, and iv therapy every 8 hrs. Waiting to find out what gene she has.
My 10 year old had pneumonia for three months. Infectious disease doctor ordered ct scan and when results came admitted us to Yale New Haven Children's Hospital. She has her picc line. We are learning tons of information but I am scared about her future. She is such a trooper. We are on vest treatments every 3 hrs, pulmozyme, albuterol, enzyme, and iv therapy every 8 hrs. Waiting to find out what gene she has.
Welcome Stephanie. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's a very difficult time but you've come to the right place~ lots of information and support to be had here!
My daughter is almost 10 and I am from CT as well. We go to the other CF center in the state (up at CCMC), but there is another member here who goes to Yale~ hopefully she will see your post. Emily was diagnosed pretty late too (at age 7) and it's really overwhelming to take it all in. Please ask any questions you may have!
My daughter is almost 10 and I am from CT as well. We go to the other CF center in the state (up at CCMC), but there is another member here who goes to Yale~ hopefully she will see your post. Emily was diagnosed pretty late too (at age 7) and it's really overwhelming to take it all in. Please ask any questions you may have!
Welcome Stephanie. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's a very difficult time but you've come to the right place~ lots of information and support to be had here!
My daughter is almost 10 and I am from CT as well. We go to the other CF center in the state (up at CCMC), but there is another member here who goes to Yale~ hopefully she will see your post. Emily was diagnosed pretty late too (at age 7) and it's really overwhelming to take it all in. Please ask any questions you may have!
My daughter is almost 10 and I am from CT as well. We go to the other CF center in the state (up at CCMC), but there is another member here who goes to Yale~ hopefully she will see your post. Emily was diagnosed pretty late too (at age 7) and it's really overwhelming to take it all in. Please ask any questions you may have!
Welcome Stephanie. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's a very difficult time but you've come to the right place~ lots of information and support to be had here!
<br />
<br />My daughter is almost 10 and I am from CT as well. We go to the other CF center in the state (up at CCMC), but there is another member here who goes to Yale~ hopefully she will see your post. Emily was diagnosed pretty late too (at age 7) and it's really overwhelming to take it all in. Please ask any questions you may have!
<br />
<br />My daughter is almost 10 and I am from CT as well. We go to the other CF center in the state (up at CCMC), but there is another member here who goes to Yale~ hopefully she will see your post. Emily was diagnosed pretty late too (at age 7) and it's really overwhelming to take it all in. Please ask any questions you may have!
juliesdreamteam
New member
Hey Stephanie.....My wife is 40 with CF. Sara, you will find, will be perhaps your strongest child. CF'ers are a strong breed. You'll see what I'm talking about as she ages. Medicines are in the pipeline now that show promising results for certain genotypes. More are on the way. I can direct you to www.steelmagnolias.org, a group of the strongest women I have ever known. All of them have children or have had children with CF. Phyllis Hildreth, Founder of "The Steels" can answer pretty much any question you may have.
Be strong.
Roy E. Ice
Julie's Dream Team
www.juliesdreamteam.com
Be strong.
Roy E. Ice
Julie's Dream Team
www.juliesdreamteam.com
juliesdreamteam
New member
Hey Stephanie.....My wife is 40 with CF. Sara, you will find, will be perhaps your strongest child. CF'ers are a strong breed. You'll see what I'm talking about as she ages. Medicines are in the pipeline now that show promising results for certain genotypes. More are on the way. I can direct you to www.steelmagnolias.org, a group of the strongest women I have ever known. All of them have children or have had children with CF. Phyllis Hildreth, Founder of "The Steels" can answer pretty much any question you may have.
Be strong.
Roy E. Ice
Julie's Dream Team
www.juliesdreamteam.com
Be strong.
Roy E. Ice
Julie's Dream Team
www.juliesdreamteam.com
juliesdreamteam
New member
Hey Stephanie.....My wife is 40 with CF. Sara, you will find, will be perhaps your strongest child. CF'ers are a strong breed. You'll see what I'm talking about as she ages. Medicines are in the pipeline now that show promising results for certain genotypes. More are on the way. I can direct you to www.steelmagnolias.org, a group of the strongest women I have ever known. All of them have children or have had children with CF. Phyllis Hildreth, Founder of "The Steels" can answer pretty much any question you may have.
<br />
<br />Be strong.
<br />
<br />Roy E. Ice
<br />Julie's Dream Team
<br />www.juliesdreamteam.com
<br />
<br />Be strong.
<br />
<br />Roy E. Ice
<br />Julie's Dream Team
<br />www.juliesdreamteam.com