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    Seeking Advice/Input

    I apologize to anyone I may have offended. My comment was not meant to do so. I truly apologize if anyone felt I categorized or called names. I am entitled to my opinion and in future I will be more mindful of my approach. littlemisssilly: I did not come here to hurt anyones feelings but...
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    Seeking Advice/Input

    I have to post again because this topic infuriates me! HOW CAN ANYONE WHO KNOWS THEY CARRY THE GENE OR HAS CF WILLINGLY BRING A BABY INTO THE WORLD LIKE IT'S OK???? YOU ARE PUNISHING THAT CHILD TO A LIFE OF STRUGGLE!!! YOU HAVE NO FREAKING IDEA WHAT IT FEELS LIKE TO HAVE CF AND YOU HAVE NO...
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    Seeking Advice/Input

    I was adopted at 3 weeks old and I am gracious for my birthmother giving me life but she had no idea she and my birthfather were carriers. I don't think it is right to spread a disease we Cfers spend our lives fighting. This chat board is proof that CF is not fun and not something anyone...
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    Moving to Hawaii....

    Hey, I know there is Kaiser in Hawaii on Maui. I guess it would depend on what Island you go too. I have been told that CF care in Hawaii is NOT good for anyone who has a lot of needs or is in a severe condition because there isn't a CF clinic. I am planning to move to Maui at some point...
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    Moving to Hawaii....

    Hey, I know there is Kaiser in Hawaii on Maui. I guess it would depend on what Island you go too. I have been told that CF care in Hawaii is NOT good for anyone who has a lot of needs or is in a severe condition because there isn't a CF clinic. I am planning to move to Maui at some point...
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    Joint Pain

    I took it upon myself to contact the Cf research Center in my area to find out how I would go about starting a research study. I will report back asap! May everyones joints feel good<img src="i/expressions/face-icon-small-smile.gif" border="0">
  7. T

    Joint Pain

    I took it upon myself to contact the Cf research Center in my area to find out how I would go about starting a research study. I will report back asap! May everyones joints feel good<img src="i/expressions/face-icon-small-smile.gif" border="0">
  8. T

    Joint Pain

    I AGREE! A study is needed! Although I am devastated that anyone else is experiencing pain like mine, I am glad to hear I am not alone. Does anyone know how to go about presenting this case study to the CF Community of physicians???
  9. T

    Joint Pain

    I AGREE! A study is needed! Although I am devastated that anyone else is experiencing pain like mine, I am glad to hear I am not alone. Does anyone know how to go about presenting this case study to the CF Community of physicians???
  10. T

    Thinking about death & Fear

    I am not afraid to die but I do visualize and dream about my death and what my loved ones will have to deal with when I pass. My thoughts and dreams usually detail HOW I die, the reactions of my loved ones, what is done with my belongings, how they pay off my bills and access my computer...
  11. T

    Thinking about death & Fear

    I am not afraid to die but I do visualize and dream about my death and what my loved ones will have to deal with when I pass. My thoughts and dreams usually detail HOW I die, the reactions of my loved ones, what is done with my belongings, how they pay off my bills and access my computer...
  12. T

    I'd love to get your expert opinions :)

    My parents are much like Sarajerome's. VERY THOUGHTFUL and SUPPORTIVE. WE are lucky and blessed. The greatest gift I receive from my family and friends is compassion and an ear. I don't expect anyone to feel sorry for me, but sometimes i just need to complain and bitch and whine and need...
  13. T

    I'd love to get your expert opinions :)

    My parents are much like Sarajerome's. VERY THOUGHTFUL and SUPPORTIVE. WE are lucky and blessed. The greatest gift I receive from my family and friends is compassion and an ear. I don't expect anyone to feel sorry for me, but sometimes i just need to complain and bitch and whine and need...
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    Whose with somebody and the parents throw insulting comments at you?

    My thoughts are such....if your man's mom is not compassionate or understanding, things may never change. I feel like 3.5 years is a long enough time for her to LEARN about you as a person, what CF means TO YOU and FOR YOU and if she feels like she can support your relationship with her son or...
  15. T

    Whose with somebody and the parents throw insulting comments at you?

    My thoughts are such....if your man's mom is not compassionate or understanding, things may never change. I feel like 3.5 years is a long enough time for her to LEARN about you as a person, what CF means TO YOU and FOR YOU and if she feels like she can support your relationship with her son or...
  16. T

    Joint Pain

    JOINT PAIN.... Lengthy story made short. I started having inflammation in 2005. It has come on gradually worse at every episode since then. First it was just my ankles and wrists, then it got to my knees and elbows and once I had a full on GOUT attack. I've had the episode happen about 12x...
  17. T

    Joint Pain

    JOINT PAIN.... Lengthy story made short. I started having inflammation in 2005. It has come on gradually worse at every episode since then. First it was just my ankles and wrists, then it got to my knees and elbows and once I had a full on GOUT attack. I've had the episode happen about 12x...
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    My rant

    WOW. I agree with most on this and seeking help for depression would be your best bet right about NOW!! WHO IS YOUR SUPPORT NETWORK? PARENTS? FAMILY FRIENDS? THEY ALL NEED TO HELP YOU! ASK FOR HELP!! Your mental state will kill you before CF does! STRESS, CF, Children, Marriage...
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    My rant

    WOW. I agree with most on this and seeking help for depression would be your best bet right about NOW!! WHO IS YOUR SUPPORT NETWORK? PARENTS? FAMILY FRIENDS? THEY ALL NEED TO HELP YOU! ASK FOR HELP!! Your mental state will kill you before CF does! STRESS, CF, Children, Marriage...
  20. T

    My teeth are gross...

    There is no CURE for the damage once it is done and as many have already stated there are a plethora of medications that damage enamel. I had severely yellowish brown teeth that slowly progressed over time. It was the one thing I was self conscience about beyond coughing or mucus or...
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