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  1. M

    Centers in TX

    Baylor has a CF/Transplant specialist, UT does transplants but doesn't have a CF specialist. Baylor should be your vest bet. And the same team of surgeons work at both FYI
  2. M

    Centers in TX

    Baylor has a CF/Transplant specialist, UT does transplants but doesn't have a CF specialist. Baylor should be your vest bet. And the same team of surgeons work at both FYI
  3. M

    We need Scandishakes

    I just sent you a PM
  4. M

    The Best Exercise to Raise PFT scores

    I can tell you running is the best medicine, it will help get the crap out of your lungs, and you will just feel all-around better.
  5. M

    restless legs / leg aches

    Im about 4 months post op and have started getting bad leg aches/ restless legs in the last couple weeks, sometimes i cant sleep or it wakes me up at 4am. Have any of you had this happen???  is so, is it the prednisone or one of the other drugs???? i do excersize a lot post op, couple this just...
  6. M

    restless legs / leg aches

    Im about 4 months post op and have started getting bad leg aches/ restless legs in the last couple weeks, sometimes i cant sleep or it wakes me up at 4am. Have any of you had this happen??? is so, is it the prednisone or one of the other drugs???? i do excersize a lot post op, couple this just...
  7. M

    restless legs / leg aches

    <BR>Im about 4 months post op and have started getting bad leg aches/ restless legs in the last couple weeks, sometimes i cant sleep or it wakes me up at 4am. Have any of you had this happen??? is so, is it the prednisone or one of the other drugs???? i do excersize a lot post op, couple this...
  8. M

    mycelex troche

    I was wondering if anybody else was taking the mycelex troche tablets after you eat and if they are taken forever after transplant or do we get to stop taking them at some point ????
  9. M

    mycelex troche

    I was wondering if anybody else was taking the mycelex troche tablets after you eat and if they are taken forever after transplant or do we get to stop taking them at some point????
  10. M

    mycelex troche

    <BR>I was wondering if anybody else was taking the mycelex troche tablets after you eat and if they are taken forever after transplant or do we get to stop taking them at some point????
  11. M

    signs of rejection

    ive been told by my  Drs that what "coltsfan" posted are all the typical signs of rejection. im 3 months out of surgery and went thru one episode of rejection, i noticed by PFTs dipped a little, i was slightly more out of breath, and luckily i had a slight fever (yes luckily, because i knew i...
  12. M

    signs of rejection

    ive been told by my Drs thatwhat "coltsfan" posted are all the typical signs of rejection. im 3 months out of surgery and went thru one episode of rejection, i noticed by PFTs dipped a little, i was slightly more out of breath, and luckily i had a slight fever(yes luckily, because i knew i had...
  13. M

    signs of rejection

    <BR>ive been told by my Drs thatwhat "coltsfan" posted are all the typical signs of rejection. im 3 months out of surgery and went thru one episode of rejection, i noticed by PFTs dipped a little, i was slightly more out of breath, and luckily i had a slight fever(yes luckily, because i knew i...
  14. M

    do all anti-reject meds get lowered over time

    <P>i know prednisone gets lowered slowly, in my case every month it gets lowered a little bit.  but i was wondering about prograf and imuran.........  i take 2mg of prograf in the morning and at night, and 75mg/50mg of imuran.  i handle most the side effects pretty well, but i was wondering if...
  15. M

    do all anti-reject meds get lowered over time

    <P>i know prednisone gets lowered slowly, in my case every month it gets lowered a little bit. but i was wondering about prograf and imuran......... i take 2mg of prograf in the morning and at night, and 75mg/50mg of imuran. i handle most the side effects pretty well, but i was wondering if the...
  16. M

    do all anti-reject meds get lowered over time

    <P>i know prednisone gets lowered slowly, in my case every month it gets lowered a little bit. but i was wondering about prograf and imuran......... i take 2mg of prograf in the morning and at night, and 75mg/50mg of imuran. i handle most the side effects pretty well, but i was wondering if the...
  17. M

    PFTs after transplant

    <P>I am exactly 6 weeks out of surgery and my fev1 is 56% and has been and has been as low as 48%, i was expecting it be much higher (90-100%) after transplant.  i havent missed a dose of anything and excersize more than most other people that are 6 weeks out of surgery (jogging and walking, and...
  18. M

    PFTs after transplant

    <P>I am exactly 6 weeks out of surgery and my fev1 is 56% and has been and has been as low as 48%, i was expecting it be much higher (90-100%)after transplant. i havent missed a dose of anything and excersize more than most other people that are 6 weeks out of surgery (jogging and walking, and...
  19. M

    PFTs after transplant

    <P><BR>I am exactly 6 weeks out of surgery and my fev1 is 56% and has been and has been as low as 48%, i was expecting it be much higher (90-100%)after transplant. i havent missed a dose of anything and excersize more than most other people that are 6 weeks out of surgery (jogging and walking...
  20. M

    weening down prednisone

    since im still relatively new the the whole transplant scene.............i was wondering if i should expect to feel any weakness or soreness from going down to 25mg of prednisone as opposed to 30mg?????   ive been on pred before (pre-tx), and felt pretty crappy when i stopped it,  but i always...
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