Search results

My 5 year old daughter has never been diagnosed but has never had it officially ruled out. She has had over 10 sweat test but they are all incinclusive because they can not collect enough sweat. I have asked our cf doctor if there is any other tests we can do or genetic testing. He say that he...

Any one know anything about this? CF clinic said they are just going to monitor it for now.

I am holding a fundraiser and would love to connect with some cfers or parents of cfers in my area. It would be great to have people come out for the fundraiser. if anyone wants any info on it feel free to msg me.

<br>My 14 month old daughter has been getting bumps/sores on her bum after a poo. Is it caused from her enzymes? I remember when she was first diagnosed they kept asking if she was gettin any sores and she never had until up to about a week ago. Now with it being christmas holidays I can't get...

My daughter was diagnosed with cf at 5 weeks now 14 months. she has deltaf508 and 3905inst. I am looking for info on 3905inst or the combo of both. Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">