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Thank you Aleksandra! As soon as I'll check them will let you know what I thought! We do aquadeks with syringe, and still managing to spill on floor and clothes!!! As far as PT is concerned I am still doing my research and I try to get him to run around so as to use his lung capacity as much as...

Thank you Aleksandra! As soon as I'll check them will let you know what I thought! We do aquadeks with syringe, and still managing to spill on floor and clothes!!! As far as PT is concerned I am still doing my research and I try to get him to run around so as to use his lung capacity as much as...

Lee Ann well done for breastfeeding your little one, IMO I feel its the best you can give to any child. Formula cannot even touch the greatness and wellness breast milk has to give. I have breastfed my boy from the very first moment, and I cannot really give you any advice as we found out he had...

Lee Ann well done for breastfeeding your little one, IMO I feel its the best you can give to any child. Formula cannot even touch the greatness and wellness breast milk has to give. I have breastfed my boy from the very first moment, and I cannot really give you any advice as we found out he had...

Thank you Heather, its really comforting hearing mums sharing worries. I'm meeting a friend of mine who's a pt therapist next week and really eager to help, so hopefully I will be shown how to do it properly!! Hope you have a great weekend and thanks again for the thoughts and information. Keep...

Thank you Heather, its really comforting hearing mums sharing worries. I'm meeting a friend of mine who's a pt therapist next week and really eager to help, so hopefully I will be shown how to do it properly!! Hope you have a great weekend and thanks again for the thoughts and information. Keep...

Thank you for the advice, will do so as well, as I always find drops of orange liquid on the floor!!! That dosage dropper is not that good! Visit to CF clinic yesterday went great, Dimi is doing great. The Pt doctor I saw, told me that precussions are not applied anymore and now I am even more...

Thank you for the advice, will do so as well, as I always find drops of orange liquid on the floor!!! That dosage dropper is not that good! Visit to CF clinic yesterday went great, Dimi is doing great. The Pt doctor I saw, told me that precussions are not applied anymore and now I am even more...

Thank you Mommafirst, I really appreciate your answer, and I assure you I have heard this before, and most probably from many members of this site. I realize that each child or adult with any combination, mild or not, is a unique case and I believe it is due to culture, environment, life style...

Thank you Mommafirst, I really appreciate your answer, and I assure you I have heard this before, and most probably from many members of this site. I realize that each child or adult with any combination, mild or not, is a unique case and I believe it is due to culture, environment, life style...

Hello everyone, I am mum to a 14month old boy with F508del/2789+5G>A gonotype. He never had any lung problems, he gained weight fine, till last summer when he was diagnosed due to loss of electrolytes. After going on enzymes (creon 10000, 1/4 of the capsule twice daily) and aquadek (2ml daily)...

Hello everyone, I am mum to a 14month old boy with F508del/2789+5G>A gonotype. He never had any lung problems, he gained weight fine, till last summer when he was diagnosed due to loss of electrolytes. After going on enzymes (creon 10000, 1/4 of the capsule twice daily) and aquadek (2ml daily)...

thank you aleksandra, so far no stains on clothes! mainly on floor!! I tasted it today, not that bad!its more scary in appearance than in taste!!! Dimi takes it quite easily. Our doctor said 2 ml per day, Dimi is 14months! Gosh somtimes I wonder how well informed are our doctors over here on CF...

thank you aleksandra, so far no stains on clothes! mainly on floor!! I tasted it today, not that bad!its more scary in appearance than in taste!!! Dimi takes it quite easily. Our doctor said 2 ml per day, Dimi is 14months! Gosh somtimes I wonder how well informed are our doctors over here on CF...

Thank you Ratatosk and Aleksandra, Will do Aquadek for now, since I got no choice!Cant just throw them away cause I dont like its colour or smell!!! its just that it stains a lot!!! How much do u give ur kids of that? Source Cf and Vitamax never heard of them, but will ask our doctor on our...

Thank you Ratatosk and Aleksandra, Will do Aquadek for now, since I got no choice!Cant just throw them away cause I dont like its colour or smell!!! its just that it stains a lot!!! How much do u give ur kids of that? Source Cf and Vitamax never heard of them, but will ask our doctor on our...

Bill thank you again for your reply. Came across some articles last night talking about late onset and how its possible. Its just that I am still new on CF and my main knowledge was that you cant be patient and find out so late in life. Now I am more informed on the disease and thank you again...

Bill thank you again for your reply. Came across some articles last night talking about late onset and how its possible. Its just that I am still new on CF and my main knowledge was that you cant be patient and find out so late in life. Now I am more informed on the disease and thank you again...

Thank you all for your amazing and so precious answers!!! You are all so great!! I have never lost my strength or courage, even on the day I was told my baby had CF. I have always been a fighter and I wont give up now! I am very positive, I have already started on pt 3 times a day, he mostly...

Thank you all for your amazing and so precious answers!!! You are all so great!! I have never lost my strength or courage, even on the day I was told my baby had CF. I have always been a fighter and I wont give up now! I am very positive, I have already started on pt 3 times a day, he mostly...