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have they ruled out cardiac malformations with an echo? It's the most common birth defect but many docs forget about it. Cardiac kids are prone to RSV, resp. infections, apnea, low 02 levels, kidney problems, and tons of sweating..

Testify- {"I have no idea why you think it's impossible for your DH or you to have a different CF mutation beyond the DeltaF508 you *know* you have simply because you have no symptoms. Have either of you had a full genetic panel done?"} I got the above impression from the CF Foundation and...

Testify- {"I have no idea why you think it's impossible for your DH or you to have a different CF mutation beyond the DeltaF508 you *know* you have simply because you have no symptoms. Have either of you had a full genetic panel done?"} I got the above impression from the CF Foundation and...

Testify- {"I have no idea why you think it's impossible for your DH or you to have a different CF mutation beyond the DeltaF508 you *know* you have simply because you have no symptoms. Have either of you had a full genetic panel done?"} I got the above impression from the CF Foundation and...

Bill - you are not beating a dead horse. We have been to an approved cf clinic, the only one in our state, which is where we got the first sweat test done. We live in a teeny tiny state and in fact only 1 doctor here treats pediatric CF. It is the same office my son goes for his cardiologist...

Bill - you are not beating a dead horse. We have been to an approved cf clinic, the only one in our state, which is where we got the first sweat test done. We live in a teeny tiny state and in fact only 1 doctor here treats pediatric CF. It is the same office my son goes for his cardiologist...

Bill - you are not beating a dead horse. We have been to an approved cf clinic, the only one in our state, which is where we got the first sweat test done. We live in a teeny tiny state and in fact only 1 doctor here treats pediatric CF. It is the same office my son goes for his cardiologist...

metoras69 - in reading your post I realize I have left out a vital piece of important information that would explain a lot! (I was trying to keep my question too short, I guess). Both my husband and myself have also tested positive for the DeltaF508 Mutation. We got tested when my son had his...

metoras69 - in reading your post I realize I have left out a vital piece of important information that would explain a lot! (I was trying to keep my question too short, I guess). Both my husband and myself have also tested positive for the DeltaF508 Mutation. We got tested when my son had his...

metoras69 - in reading your post I realize I have left out a vital piece of important information that would explain a lot! (I was trying to keep my question too short, I guess). Both my husband and myself have also tested positive for the DeltaF508 Mutation. We got tested when my son had his...

<P>Thank you foryour comments! Wantedto let you know (in case there was interest) I spoke with the CF Foundation and my local genetics center. The CF Foundationlady said no, she didn't need a sweat test b/c the chance of their being another mutation was so small, and if there was either my...

<P>Thank you foryour comments! Wantedto let you know (in case there was interest) I spoke with the CF Foundation and my local genetics center. The CF Foundationlady said no, she didn't need a sweat test b/c the chance of their being another mutation was so small, and if there was either my...

<P>Thank you foryour comments! Wantedto let you know (in case there was interest) I spoke with the CF Foundation and my local genetics center. The CF Foundationlady said no, she didn't need a sweat test b/c the chance of their being another mutation was so small, and if there was either my...

Doesa childwith a positive DeltaF508 mutation carrier statusstill need a sweat test?

Doesa childwith a positive DeltaF508 mutation carrier statusstill need a sweat test?

Doesa childwith a positive DeltaF508 mutation carrier statusstill need a sweat test?

Oh also, I know Pulmicort works great for a lot of mom's.

Oh also, I know Pulmicort works great for a lot of mom's.

Oh also, I know Pulmicort works great for a lot of mom's.

There are different kinds of inhalers he can try, my son (CF carrier, non CF) also has allergy related asthma/mild persistant asthma and is on Flovent 2x daily as a preventative, this keeps the inflammation down, and takes Xoponex (levoalbuterol) for acute attacks only. Did your son have...