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My son 19 with cirrohsis of the liver, enlarged spleen with low platelet count, hemolosis, insulin diabetic, and acites. He was doing very well until age 17, FEV1 was 130% now it is 30%. I have no idea why things had to wait until now. I believe his liver was the cause of lung function going...

Have any of you prior to transplant get so irritated of how sick you were, interrupted, angry to the point of saying I will put on my oxygen later or PT later. Things like that as I no that can go against you when getting transplant. My son is 19 and very fed up with being sick and told the PT...

Thank you! I have thought of alot of things but not that one! I will ask!

Yes, my son 19 has cirrohsis of the liver, enlarged slpeen, insulin diabetic, hemalosis and is fed up also! Yellow and acites. A year and a half ago his lung function was 110% now it is 30%, huge change so quickly. He is going through the last testing for a liver/lung transplant. They want to...