Being almost 20 I'm in your same boat. My CF has been mild to moderate. When I was younger use to post FEV's like you well now Im in the mid 70s to lower 80s and they been slipping some. It's just part of the illness. You're going to have a decrease in lung function over time. Trust me 20 years...
Usually the more expensive generators are the more you can hook up more stuff up to it. It is messy but running extension cords are usually the way to hook it all up. Hope everyone is taking care out there on the east coast. Sending prayers from the heartland.
Well, as a 19 year old I know what you mean. Only thing I can say is let your personality take over. Let that define you not CF. If anything let your strength and courage of fighting CF shine through. I can't tell you how many girls have admired me for my strength. Another good point is that us...
Might check it out to see if it isn't a rib out of place. I thought it was muscles when I was in the hospital, but turned out to be a rib out of place.
Yeah if I remember right im 508. I would say watch out for fatty foods and greasy foods. Those two will mess with your stomach if you skip the pills. Anymore I rarely skip my pills because I don't know about you all but, I rather spend my day doing something else rather than sidelined on the...
I've always had bad luck with peripials in the top of my hand. The sailene would cause inflamation in my entire viens up my arm now that was painful. My question is instead of the wrist why not draw blood on further up on your arm? As for PICC's well to much scar tissue landed me a Port ,which...
I beleive that mainstream media just likes to spread terror about events. We as humans need to learn how to chiper fact from fiction. I wonder how much yellow journalism is still in our media today? I have never really believed anything I have seen on TV. Im from Missouri you gotta show me that...
I actually brought up the subject to the disability services at my college. The lady who helped me was quite snooty and did not understand my point. I was not asking who the person was who had CF. I just wanted to be sure I did not come into contact with the person or had classes with them. Her...
I have noticed that as well with my CF. There have been times I have forgotten my enzymes and I thought I would pay for it later on with a stomach ache. Yet I didn't though makes me wonder if my pancreas picks and chooses its days when it works right. could even be what food I have eaten as...
I'll be the first to admit that it is one of my least favorite tests to do. I make clear to them though I'll drink the syurp if they draw it through my port. Really they do not object that request. I say make request's to them that will make you at ease with them doing the test. If you have a...
Cipro doesn't bother me as bad as Levaquin did. My word after being on Leva by oral for two weeks then in the hospital with the IV form I thought my knees were gone. Shame those meds have to have such harsh side effects..
Howdy! I am Zach!
I'm 19 (be 20 this Dec) and I was diagnosed with CF at 6 months of age. I live in the Show Me State (Missouri).
I am the only person in my entire family to have CF. A lot of family are carriers of the gene though.
Friends and family have always been there for me and I don't...
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