Search results

I started morepenem on Tuesday. No problems. Friday morning my torso was covered in hives. I visited the ER and was sent home with orders to stop the med and treat with benedryl itch cream Friday afternoon they send me to infusion center to try a new medication— don’t remember its name. Within...

Looks like that is what we are doing. Monday or Tuesday of next week. Update- they signed me up for services/providers/facilities that are out of network. I would have to pay for entire 2 weeks of IVs out of pocket. Nope… not gonna do that.

I have NO out of network benefit at all. I would have to pay for all services out of my own pocket. I have to exhaust all Physician that are in network and document that they can’t help me. Then I can begin the waiver process. They said even after all of that they can still refuse cover out of...

I tried Meformin... I just end up with low blood sugars... way lower than they should be. I took it for a few months to see if my body would get used to it but... Nope!! I just counted my carbs, exercised and gave up desserts. My blood sugars starting being normal again. Counting carbs is...

Doc wants to get my lung infection treated. He wants me to walk into ER and ask to be admitted for two weeks. No orders placed... no pre-authrorizations... Nothing. My insurance company said if that happens they won't likely pay for services. Nurse and doc tried to tell me that things have...

Yes, I had to stop. My liver levels were quickly climbing. I was unable to sleep while taking Trikafta. My heart beat very rapidly even at rest. I felt jittery and constantly anxious. My was loosing my hair in spot. I was constantly hungry and started to gain weigh rapidly. I exercised and...

I am 50 with CF. My pulmonary doctor suddenly no longer feels comfortable treating my CF. We have been going to see him rather than a CF doc at a CF Clinic is because CF docs and their facilty are out of insurance network (as is official "tune up" hospital location). I spoke with Compass...

I have chronic pain but not due to CF. I do get rib pain from coughing but with a massage and heat that goes away pretty quickly. I have a pretty high tolerance for that part of my body. I have hip dysplasia and my hips are in constant pain (ranges anywhere from a 3 to a 10 on the pain...

I have some of the same symptoms that you described. My docs said I likely have CF related arthritis. For me it can sometimes mean that I am fighting something... especially if I have a bad flare up of joint pain in numerous parts of my body. After saying this.... weather can also affect my...

My situation just got serious. The same people who refuse to stay home when they are sick.... we found out that they have pneumonia. My husband is now super sick (coughing). My son just got sick this morning (body aches and chills). I am freaking out to say the least. I CANNOT get pneumonia...

Thank you for your words of wisdom. I think I will start using hand sanitizer more often and insist that my son sit with the family instead of with his friend during church (he was the first person to get sick). No more carpooling to bible study.... they can take their own kids.

We are entering cold and flu season and I am freaked. We have new "friends" and they are NOT interested in knowing anything about Cystic Fibrosis. Both my husband and I have tried to give them some basic information. (They are mostly my husband's friends). They attend the same church that we...

I have to wear a liner because when I cough hard.... I pee. After I was pregnant it just got worse. They make pretty discreet (think that is the correct word) products out there.

I tried it a few years ago. I was horribly allergic to it. My doc said he had lots of success with this drug.

I would do an antibiotic!!! I had a tooth pulled a year and 1/2 ago and I developed Nocardia. I found out you don't mess with Nocardia. Talk to your CF doc.

I live in an extremely dry climate. My hands have cracked, my feet look like the desert floor and my family has been having nose bleeds. Hubby does heating and air conditioning for a living... We already have a whole house air cleaner and now hubby wants to get a whole house humidifier. Are...

I started to have pre-term labor at 28 weeks. Was on bedrest most of pregnancy. They gave all those wonderful pre-term labor drugs and by the time it was time to deliver, my son was too big for me to deliver him...C-section. My petite CF body versus a healthy full term baby... not a good...

We tried to sign up for health coverage with our agent... found out we have to sign up for medicaid first. It is taking 45 days + for them to process medicaid applications. We won't be able to sign up for the insurance plan we want until we get a medicaid denial. If we get our medicaid...

Iefisherman, I got to know Jazzymom, too. Miss her badly!! Miss those night chats. Virtual parties (especially around the holiday), laughing, talking about important stuff and silly stuff. I just watched this on Netflix the other night... haven't cried that hard in a very long time. I...

It was PCIP. I was not a scam... it was on their letterhead and I found on the internet (after much searching) that they were out off funding. The frustrating part was from what I read they were projecting loss of funding before they even added my state to the plan. We are looking at over...