Search results

Hello, Another issue that the transplant team considers is how complient you are with your meds and treatments you are on now. In other words , if you are not taking care of yourself now.. ie: not taking meds, aresols, etc now , would you take the meds and such after your...

Hello, "Aersolized Cyclosporine- experimental anti rejection"... I have been using this form of anti rejection for approx 8 -9 years. UPMC in Pittsburgh Pa started me on it. I believe they were the first center to "experiment" on this. It is still going thru the approval process with...

I guess if you two were glued back like a kindergarten project , I guess my surgeons were lil older and in grade school. The used a staple gun on me. Counting the all the staples across my chest and ones used around the chest tubes I believe I counted over 100. Not too bad, I'll give them an...

I had my tx on June 18, 1996 and by July 2 or 3 I was staying as out patient at the Family House near UPMC. But over the holidays my left lung collapsed and I was back in with another chest tube. I believe it was towards mid to late July when I was released to go home in Ohio. So the initial 2...

Ok, here is my list. Neoral - anti rejection Aersolized cyclosporine - experimental anti rejection Pravachol Bactrim Prednisone Magnesium Vit D Norvasc Vit B complex & C Creon 10 Miacalcin Fosamax Calcium Lisinopril Barry, Buckeye 44 cf , 9 1/2 years post tx , UPMC

Hello, First off, I'm the "nut" that Candice is refering to. Yes I'm 9 1/2 years post tx from UPMC in Pittsburgh , PA. Ok, back to the questions, the pain as far as my tx went was ALOT less then I expected. As someone posted.. the chest incision did feel like a belt tightning...

Margaret, The UPMC we are talking about is The University of Pittsburgh Medical Center , in Pittsburgh. Barry

Mike, Yes, I was diagnosed later in life then alot of other cf'ers. I was 15 at the time. I was doing fairly "normal" health wise till in my late 20's. Then after being listed for 33 months I got tx'd in 1996. Barry 44yo 9 1/2 post tx

Martha, First off don't listen to her, shes the freak.. lol anyways shes a great friend, and agree on MOST things. What doctors are you seeing at UPMC? I started seeing Dr Pilewski just this past year after seeing Iacona for years. Will you be staying at one of the Family...

Martha, My scar goes from arm pit to arm pit. As far as breaking any bones, they went thru my sternum(breast bone) I still have the pins in it that held it back together. Barry, 44 OH ... 9 1/2 years post tx UPMC

Another reason statistics show that CF tx survive longer is... that we get a double lung tx where as in other deseases the recipiant might only get a single lung tx. In their cases.. they only have one fresh new lung free from desease and their old lung still might not be real good. CF'ers HAVE...